PROTEUS FAMILY NETWORK UK

Updated 24 days ago
  • ID: 365946/115
Although Proteus syndrome is known to be caused by genetic mutation it has not been proved to be inherited. We support Research in to the causation and possible future treatment of the condition... Our Medical Board is supported by Consultants and specialised nurses from Great Ormond St Hospital for children in London, the Royal Free Hospital in Hampstead, Research specialists from the ICH - Institute of Child Health - in London and Addenbrookes Hospital in Cambridge... In loving memory of Michelle Gardiner 1997-2015 and all those who have lived with Proteus and KT and who are no longer with us…..we fight on…..'that's just how we roll…'
Also known as: PFNUK, Proteus, Proteus Syndrome
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Interest Score
1
HIT Score
0.00
Domain
proteus-uk.org

Actual
proteus-uk.org

IP
176.32.230.7

Status
OK

Category
Other
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