PAGET - Key Persons
Job Titles:
- Specialist Nurse and Director of Educational Resources
Ensuring the well-being of individuals affected by Paget's disease and those who care for them requires education and support. Diana is a Registered Nurse who oversees these vital services, providing evidence-based information and guiding individuals towards sources of support, including our Helpline, networks and virtual support groups.
Job Titles:
- Trustee
- Consultant in Metabolic Medicine
Leicester Website The Centre of Excellence in Leicester is based at the Metabolic bone clinic, that runs under the department of Chemical Pathology and caters to all types of Metabolic bone disorders including Paget's disease. Directors: Dr Faiz Rahman, Dr Prashanth Patel Facilities: Clinics at Leicester Royal Infirmary and Leicester General Hospital Day case investigation unit at Leicester General Hospital Access to bone turnover markers Other services such as MSK radiology, Orthopaedics, ENT and Nuclear medicine are also available at UHL Trust Location: Leicester General Hospital Gwendolen Rd Leicester LE5 4PW Open in maps
Faiz is a Consultant in Metabolic Medicine and Chemical Pathology, at the University Hospitals of Leicester, where he is involved in caring for those with Paget's disease.
Cambridge Website Consultant rheumatologist and metabolic bone physician Dr Gavin Clunie heads the team at the Metabolic Bone Unit at Addenbrookes Hospital, Cambridge. They also participate in multicentre research studies and audits of clinical care across the region. Directors: Dr Gavin Clunie Facilities: Day case facilities for treatment Diagnostic investigations on site Supported by a multidisciplinary team Location: Metabolic Bone Unit, Cambridge University NHS Hospitals NHS Foundation Trust Addenbrookes Hospital, Hills Rd Cambridge CB2 0QQ Open in maps
Dr Sheelagh Farrow graduated in Physiology/Zoology at the University of Sheffield and gained a doctorate in Biochemistry from the University of Oxford. Her career has included work on multiple aspects of bone metabolism. Prior to retirement she was the Managing Director of International Medical Press, which provides independent and accredited education to healthcare professionals.
Middlesbrough Website The Bone Clinic is based at James Cook University Hospital, within the Department of Rheumatology. Clinics take place for those with Paget's disease as well as other bone disorders. Dr Tuck and the team in Middlesbrough are also involved in research into Paget's disease. The team consists of Dr Stephen Tuck (clinical lead and director), and two consultant biochemists (Dr Harish Datta, Dr Isaac Oluwatowoju and a registrar). The wider team includes physiotherapists, and occupational therapists, specialist radiologists and pathologist (Dr Julie Walker). They work closely with orthopaedics and provide a full range of treatments. Directors: Dr Stephen Tuck Facilities: Dedicated day case unit Tertiary referral centre for complex cases Imaging including x-ray, CT, MRI and isotope bone scans Location: Department of Rheumatology James Cook University Hospital, Marton Road Middlesbrough TS4 3BW Open in maps
Dr Tori Herridge interviewed experts from Italy, Spain, Canada, Brazil and India to hear their unique perspectives on Paget's disease. Dr Herridge, an evolutionary biologist and a presenter on Channel 4's Bone Detectives series, recorded the interviews, which were released for Paget's Awareness Day. In addition, Mr Recardo Patrick was interviewed by Professor Ralston to explain his personal experience of Paget's disease.
Job Titles:
- Engagement Manager
- Operations and Engagement Manager / Operations
and Engagement Manager, Jen Woodworth, joined the Association in 2019 and is responsible for membership administration, and various communications including social media.
A retired company director, Alan lives in Wokingham. He has Paget's disease and believes the interaction between patients and clinicians brings mutual benefits.
An Orthopaedic Surgeon in the Metabolic Bone Unit of the University of Sheffield, Professor Mark Wilkinson has both an academic and clinical interest in Paget's disease. He became a Trustee in January 2022.
A solicitor at Jones Day, London, Mohamed brings his legal expertise to the Board of Trustees.
Entertainer and businessman, Recardo Patrick has Paget's disease. He rose to fame as lead singer with the band, Sweet Sensation.
Based in Bristol, Mrs Amanda Sherwood became a Trustee in 2020. Now retired, she has experience in working for societies and teaching organisations, which specialise in the field of bone and related topics.
With many years of experience in the healthcare sector, Eve lives in London and is a Chartered Accountant, currently working in the drug discovery industry.
Mrs Joyce Cupitt's husband had Paget's disease. She served as a Trustee, for many years, before becoming an Honorary Patron in 2014.
A retired nurse and midwife living in Orsett, Mrs Kely Burman has not only cared for those with Paget's disease, but her mother also had the condition. Kely joined the Board of Trustees in 2020.
Job Titles:
- Honorary President
- Professor
Our Chair, Professor Stuart Ralston discusses Paget's research in the video below with Professor Graham Russell, our Honorary President (run time approx. 15 min).
Emeritus Professor of Musculoskeletal Pharmacology within the Botnar Research Centre, Oxford and the Mellanby Centre for Bone Research, Sheffield, Graham Russell played a key role in the discovery and development of bisphosphonates for the treatment of bone disorders.
Job Titles:
- Member of the Paget 's Association
Michael became a member of the Paget's Association and wanted to share his experience of Paget's disease. Michael works as a part-time security officer in London and is also studying full-time for a Health Sciences with Foundation Degree.
Vice-Chair of the Paget's Association, Professor Rob Layfield researches Paget's disease at the University of Nottingham. He studies the protein that was found to carry mutations in some cases of Paget's disease. He became a Trustee in 2016.
Chair of the Paget's Association since 2018, Professor Stuart Ralston is a Rheumatologist at the Western General Hospital, Edinburgh. He has researched widely on the role of both genetic and environmental factors in Paget's disease and has designed and led several large‑scale clinical trials investigating the best methods of treatment, including the PRISM, PRISM-EZ and ZiPP studies.
Sir Henry Paget is the great-great-grandson of Sir James Paget (1814 - 1899), after whom Paget's disease is named.
Jim is 71 and from Virginia, USA. He was shocked to discover he had Paget's disease. Here he shares his experience of diagnosis and treatment. Read more
Sir James Paget's name was given to several diseases including Paget's Disease of Bone, studying it in great detail and writing his first paper about it in 1877