PIA

All of us at PiA are passionate about the need for a national organisation to represent patients with PID. The PiA currently has about 2,200 members and we are doing our best to encourage the development of an alternative organisation as soon as possible. It is ironic that we find ourselves in this situation at a time when the NHS will inevitably be cutting costs and rationalising services. We are already seeing some closures of PID clinics for adults and national representation by a patient group will probably be needed to prevent unplanned and disorganised reductions in services... As many of you know I left PiA some months ago, having been Chief Executive with the Charity for more than seven years. However the Trustees have asked me to oversee the closure of the Charity, following the recent decision to close the doors on 31 December - and I have agreed to do so. Needless to say this is a very sad time for all of us at PiA. We have worked extremely hard to find alternatives to..

Primary location: United Kingdom