NTSAD

NTSAD is one of the oldest patient advocacy groups in the country. We focus on funding research, supporting over 700 families and individuals worldwide, and raising awareness to prevent disease... Today, NTSAD is recognized as a leading non-profit patient group with a demonstrated commitment to service, science and support. NTSAD gives help and hope to thousands of individuals and families from many backgrounds and ethnicities who have been or are affected by Tay-Sachs, Canavan and related genetic diseases all over the world... NTSAD provides comprehensive support services to affected families and individuals through its Peer Support Group (PSG). NTSAD links more than 700 parents, grandparents, extended family, affected adults and their families and caregivers to each other via a confidential network. Other services available to PSG members include an Annual Family Conference, PSG directory, quarterly newsletters, and materials and support for fundraising and awareness events.

Primary location: Boston United States