EGAN

EGAN - Patients Network for Medical Research and Health - is a dynamic, non-profit collaboration of patient organisations that work together because they recognize the value of their involvement in genetics, genomics and medical biotechnology for the prevention and treatment of genetic, multifactorial and congenital disorders. In addition, EGAN pays particular attention to the ethical, legal, psycho-social and cultural implications and the impact on society at large injecting a patient focussed perspective in to political and societal debate on these issues... EGAN is working together with other European patient alliances and organizations to build a unified approach to genetic and biotechnological issues from the patient perspective.

Primary location: Soest Netherlands