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1-6 of 6 results

  • lgdaregistry.patientcrossroads.org
  • 2
The Lymphangiomatosis and Gorham's Disease Alliance (LGDA) is a community-led 501(c)3 non-profit working to improve the lives of those with complex lymphatic anomalies: GLA/lymphangiomatosis, Gorham-Stout Disease (GSD), Kaposiform lymphangiomatosis..
Relevance: 74.15534
  • www.invitae.com
  • 4
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At Invitae, we believe that good health is possible-and that genetic information has the ability to transform the way medicine is practiced, making what once seemed impossible possible, as we empower people to make decisions about their health..
Relevance: 22.90643
  • www.pscpartnersregistry.org
  • 1
  • 1
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Our aim is to collect basic data on PSC patients; increase and accelerate research; advocate for the unmet needs of PSC patients; recruit for clinical trials in search of PSC treatments; and facilitate studies leading to a better understanding of..
Relevance: 21.857103
  • www.invitae.com
  • 4
  • 1
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Part of our mission at Invitae is to support legislation that improves the access, health equity, quality and affordability of healthcare, including efforts to provide genetic testing for all who can benefit. Invitae supports policies that both..
Relevance: 19.58297
  • connect.invitae.com
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Our goal is to have this Patient Insights Network (PIN) be a place where patients can share their data with other patients and with researchers. If you like, you may also opt in to be contacted by doctors and medical professionals who are actively..
Relevance: 19.450962
  • ldconnect.patientcrossroads.org
  • 1
  • 2
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Lipodystrophy Connect is currently managed and supported by Invitae, as a result of the 2017 acquisition of the patient registry company, AltaVoice(formerly known as PatientCrossroads). After the loss of external funding, Lipodystrophy Connect..
Relevance: 17.700193