CYSHCNET

CYSHCNet was founded in 2017 as a cooperative agreement with HRSA's Maternal and Child Health Bureau to research health systems that support CYSHCN, their families, and providers... The people who care for CYSHCN continue to inform our research in incredible ways. They help us ask better questions and let us know when we're asking the wrong questions. They inform all areas of our work-even the definition of "family." The people who love, care for, and support CYSHCN are vast. It's not as simple as including parents only. It's also spouses, siblings, grandfathers, grandmothers, aunts, uncles, and cousins. It's neighbors, friends, teachers, and other parents of CYSHCN. They love their CYSHCN and provide the type of care many of us might think should only happen in a hospital. We continue to learn more about the level of care they provide at home. Our group is working to understand so we can help support caregivers in the areas we can influence, such as care coordination, financing-even..