VASCULAR EDS

Thought to affect around 740 people in the UK, vascular EDS is a connective tissue disorder and means patients are at daily risk of their internal organs and arteries spontaneously rupturing... Vascular EDS is a life threatening connective tissue disorder that affects all tissues, arteries and internal organs making them extremely fragile... The charity was founded in 2013 by Jared and Sarah Griffin, after their daughter Annabelle was diagnosed with vascular EDS at the age of 3.

Registration numbers: 1157074 (W), ZA450659 (W)

Primary location: Bury United Kingdom