PULMONARY HYPERTENSION - Key Persons

Abby Sickles

Job Titles:
  • Patient & Caregiver Programs Program Manager X777
Abby connects patients and caregivers to PHA's educational and support resources. She manages PHA's support resources, including in-person support groups, telephone support groups, email mentors, support line and Facebook groups. Abby works to grow these programs to provide support to community members across the country. Abby also assists in planning programming for PHA's Biannual Conference.

Anna Ryan Hemnes

Anna Hemnes, M.D., is a translational physician-scientist who researches the role of altered metabolism in pulmonary vascular disease. She treats patients at the Vanderbilt Center for Pulmonary Vascular Disease in Nashville, Tennessee and directs clinical studies of pulmonary hypertension treatment, diagnostic modalities in pulmonary vascular disease and new pulmonary vascular disease classifications. Dr. Hemnes and her research group study the effect of BMPR2 mutation on insulin-mediated intracellular signaling in the pulmonary vasculature and the right ventricle. Her clinical research interests include the role of insulin resistance and metabolic syndrome in human pulmonary vascular disease. Her interest in deep molecular phenotyping of pulmonary vascular disease led to work that demonstrated a molecular signature of vasodilator-responsive pulmonary arterial hypertension. Her publication of the study was among the earliest to show the feasibility of precision medicine for an ultra-rare pulmonary vascular disease. Her lab now investigates new blood-based omic predictive strategies for FDA-approved therapies for pulmonary arterial hypertension. She is involved in efforts to bring precision medicine techniques to pulmonary vascular disease. Dr. Hemnes received her medical degree from Johns Hopkins University in Baltimore, where she completed a fellowship, internship and residency. She also completed a fellowship in pulmonary vascular disease at Vanderbilt University Medical Center.

Archivist PHA

Job Titles:
  • Member of Corporate Committee
PHA's Mission and Vision Our mission is to extend and improve the lives of those affected by PH. Our vision is a world without PH, empowered by hope. We are the largest and oldest pulmonary hypertension association in the world, and we are changing the history of an illness. We started from simple beginnings in 1991 when four women met around a kitchen table in Florida. Since then, the Pulmonary Hypertension Association has evolved into an international community of more than 16,000 people with PH, caregivers, family members and health care professionals. PHA is a 501(c)(3) nonprofit organization that relies on donations to fund its many programs, including a network of 200-plus patient and caregiver support groups, lifesaving early diagnosis awareness and education programs, specialty care resources, and research to prevent and cure PH.

Bianca Woodard

Job Titles:
  • Office Administrator X746
Bianca is PHA's first line of communication, connecting patients, caregivers and health care professionals from the pulmonary hypertension (PH) community with PHA's staff. From answering PHA's phone lines to managing store orders and helping with mail donations, she answers any questions that come her way or will direct callers to the appropriate staff member. She has a passion for helping others, takes pride in her work and loves the fact that she can truly make a difference here at PHA.

C. Gregory Elliott

Greg Elliott, MD is Professor of Medicine at the University of Utah School of Medicine and Chairman of the Department of Medicine at Intermountain Medical Center. Dr. Elliott is a graduate of Brown University, and he earned his MD at the University of Maryland. Dr. Elliott completed his residency and Chief Residency in Medicine at the University of Maryland Hospital followed by pulmonary and critical care fellowship training at the University of Utah Affiliated Hospitals. During his fellowship Dr. Elliott began to focus his research efforts on understanding and treating pulmonary hypertension. He was invited to serve as a principal investigator for the first registry of patients diagnosed with primary pulmonary hypertension, sponsored by the National Institutes of Health (1983-1987). Dr. Elliott established the first Pulmonary Hypertension Center in the Intermountain West to provide advanced care for patients with pulmonary hypertension and to advance understanding of pulmonary hypertension. Dr. Elliott's center was among the first in the United States to treat pulmonary hypertension with Flolan and to care for patients after heart and lung transplantation or pulmonary thromboendarterectomy. Dr. Elliott's center also was a major contributor to the REVEAL registry (2006-2009); and to the discovery of gene mutations which cause heritable forms of pulmonary hypertension. Dr. Elliott has served the Pulmonary Hypertension Association (PHA) since 1994 when he organized the collection of DNA samples in a "research room" at the first national meeting of the PHA. He subsequently served as chair of the PHA's Scientific Leadership Council. In this role he organized the first Scientific Program to be held at a PHA international meeting. He also served on the PHA Board of Trustees where he advocated for earlier diagnosis of pulmonary hypertension in an era of effective treatments. Dr. Elliott attended every national/international meeting of the Pulmonary Hypertension Association; and, most recently, he chaired the Research Portfolio Working Group whose charge was to outline future research portfolio options for the PHA Board of Trustees.

Carl Hicks

Job Titles:
  • Member of the Community and Tireless Advocate for PHA
  • Retired
Carl Hicks retired from his position as executive vice president at PHA in November 2016. Prior to becoming a member of PHA staff, Carl served on the PHA Board of Trustees from 2002 - 2012, and served on every committee, as well as leading the board as chair during his tenure as a trustee. A beloved member of the community and tireless advocate for PHA, Carl lost his daughter, Meaghan to PH while serving as board chair. Upon his retirement and in recognition of his dedicated service, Carl was honored as the first and currently only honorary lifetime member of the PHA Board of Trustees. After his service with PHA, Carl joined industry where he serves as vice-president for patient advocacy and community support at SteadyMed Therapeutics.

Cheri Abbott

Job Titles:
  • Member of the PH Professional Network
Cheri has been a member of the PH Professional Network (PHPN) publications committee since 2010 and the PHPN Communications Chair since 2015. She is currently the PHPN, Chair-Elect. Additionally, she has been a member of the Society of Clinical Research Associates (SOCRA) since 2011 and currently serves as the Chair of the Rocky Mountain Chapter.

Colleen Brunetti - Chairman

Job Titles:
  • Chairman
Colleen Brunetti was diagnosed with PH on January 2, 2008 after a trip to the emergency room for unrelated symptoms. Since then, she has been under the care of a PH Specialist and on a variety of treatments. Colleen lives in in Connecticut with her husband and their two children. Colleen's view on PH is two-fold. The first is to choose to live life fully and purposefully, despite illness and possible limitations. Second, she believes that if there is an expectation of a cure, the individual members of the PH community must have an active hand and voice in making that happen. To that end, Colleen has dedicated as much as she can to PHA. Besides serving on the Board, she helped co-found Generation Hope, has worked on several fundraisers, spoken at PHA events round the country, testified to the FDA and Congressional representatives, made several media appearances, and published a book to help others learn to thrive, not just survive, no matter the diagnosis. (See book HERE) Professionally, Colleen started her career as a teacher, but PH forced her to leave the field shortly after diagnosis. Since that time, she has worked to re-define her professional life with writing, speaking, and health coaching.

Colleen Connor

PH Patient West Chester, PA Colleen lives in West Chester, PA with her husband Shawn and two children, Ryan and Keira. In 2005 she realized she had trouble breathing and sought medical attention. Her diagnosis of pulmonary hypertension came more than two years later. Colleen was a long time employee of SAP America and served as a Project Manager and then Vice President of Sales in various North American and Global capacities. Two years after diagnosis, she needed to depart the fast pace position that she loved to better care for her health in the midst of a PH decline. Upon diagnosis she relied heavily on PHA's Doctor Directory and Survival Guide to find appropriate care and navigate the uncertainties of PH. She was relieved to be connected with others through support groups, online discussion forums, and the biennial International PH Conference. She regularly attends the Penn Presbyterian Medical Center support group and has had the opportunity to become friends with many local patients and their families. She credits the knowledge and support PHA provided through its resources and programs as lifelines during the most vulnerable of times. Colleen and her family chair the biennial Philadelphia's Hope for a Cure PHA Gala which raises funds for PHA programming and research. She has supported advocacy initiatives including securing and maintaining a partnership with Senator Casey, PHA's first sponsor to introducing a PH Bill into the Senate. She has participated as panelist with the FDA, and she actively participates in PH medical studies at the National Institute of Health and the University of Pennsylvania. Colleen serves on the PHA Board of Trustees, and has a seat on the Development Committee and the Strategic Planning Committee.

Cynthia L. Martin

Job Titles:
  • Program Director, PHCC Accreditation Program
Cynthia manages Pulmonary Hypertension Care Center (PHCC) accreditation and PHA Patient Registry (PHAR) operations to improve quality care for people with pulmonary hypertension. Her responsibilities include implementing and managing PHCC accreditation/re-accreditation processes and site enrollment for the PHAR. In her prior roles at the National Committee for Quality Assurance, Cynthia managed recognition and accreditation programs.

Debra Hines

Debra has been leading the Dallas PH Support Group in Dallas, TX since early 2017. She normally uses an agenda to keep them meetings on track, however, she is very flexible if they veer off. The group is very close knit and family oriented. They have monthly meetings. Debra is chair of the Southwest Regional Networking Group. Debra is also on the ZebraPhest planning committee.

Diane Ramirez

Diane was diagnosed with pulmonary arterial hypertension in 1987. She is the PHA support group leader for the Piedmont Area Support Group in North Carolina. Her group normally meets four times a year. Diane stays in contact with her group members and enjoys spending time with everyone. Diane Ramirez was diagnosed with pulmonary arterial hypertension (PAH) in 1987. After being diagnosed for a few years, her younger brother and sister were diagnosed with the same illness.  Diane's primary motivation to help the Pulmonary Hypertension Association with its mission comes from losing family members to PAH. She wants to help as many patients as possible. Diane has been involved with advocacy and awareness since 2006. She has met with most of North Carolina's delegation within the state and in Washington, D.C. Diane has also served on the Board of Trustees for 10 years, the oversight committee for the Pulmonary Hypertension Care Centers and helped with the formation of the PHA Registry. She is a support group leader and serves on the support group leader advisory board.

Doug Taylor

Job Titles:
  • Support Group Leader, PH Patient / Patient Advocate, and Retired Architect / Lexington, South Carolina
Like most patients, Doug Taylor's journey with pulmonary hypertension began a few years before he was actually diagnosed. By early 2003 it was obvious that the problem was more serious than the asthma diagnosed by his primary care physician. May 2003, Doug volunteered for an EKG to help out medical students and the results led his primary care physician to revise the diagnosis to suspected pulmonary arterial hypertension. The battery of tests that followed, including a right heart catheterization, confirmed idiopathic pulmonary arterial hypertension. He was told that he probably had less than 3 years to live. Now a long-term survivor, Doug has been active with the Pulmonary Hypertension Association since 2007 when he took over as leader of the South Carolina PH support group, the Midlands SC Palmetto PHriends. Doug sits on several of PHA's Advisory Boards including the: Newly Diagnosed Advisory Board; Advocacy Advisory Board; PHA PHriends Advisory Board; and, Men Living with PH Advisory Board He has been active with PHA's International Conference and Scientific Sessions first as a panelist in 2008, then on the Conference Planning Committee (2010, 2012, 2014, 2016). Doug currently serves as Co-Chair of the Conference Committee for 2018, and has a seat on the Governance Committee. According to Doug, the best thing about pulmonary hypertension is the people you meet along the way - other patients, caregivers, healthcare providers, PHA staff, and pharmaceutical reps. They all come together to make our community the special environment that it is. He encourages himself and other PH patients with two messages:

Dr. Joel A. Wirth

Job Titles:
  • Director, Pulmonary & Critical Care Medicine
Dr. Joel A. Wirth is a pulmonologist in South Portland, Maine and is affiliated with multiple hospitals in the area, including New England Rehabilitation Hospital of Portland and Mercy Hospital of Portland. He received his medical degree from McGill University Faculty of Medicine and has been in practice for more than 20 years.

Dr. Mike McGoon

Job Titles:
  • Professor of Medicine ( Emeritus ), Mayo Clinic / Rochester, Minnesota
  • Retired Consultant
Dr. Mike McGoon is a retired consultant in the Division of Cardiovascular Diseases and Professor Emeritus of Medicine at the Mayo Clinic. He did medical school and residency at Johns Hopkins and has been on staff at Mayo since 1983. He has cared for patients with PH since 1982 and started Mayo's PH Clinic in 1996. Dr. McGoon has a long history with the Pulmonary Hypertension Association. He served as Chair of the Scientific Leadership Council from 2002-2004, Chair of the Board of Trustees from 2006-2008, and Chair of the PHCC Oversight Committee from 2013-2016. Dr. McGoon has seats on both the Development and Strategic Planning Committees. He lives in Rochester, MN with his wife Bonnie. His three daughters live in Phoenix (plus 2 grandchildren), Minneapolis (plus 3 grandchildren) and Eugene, OR and his son lives in Rochester.

Ed Simpson

Job Titles:
  • Professor Emeritus, College of Education at Northern Illinois University
Ed Simpson has been a part of PHA since its inception. He is a co-founder of the United Patients Association for Pulmonary Hypertension (later to become the Pulmonary Hypertension Association). Ed was co-chair and the designer/planner of the first two International PH Conferences in 1994 and 1996, both held in Stone Mountain, Georgia. Ed also was the grant writer and chair of the first Pulmonary Hypertension Association Leadership Conference held in Chicago, Illinois in June 1997. He served as vice president of PHA from 1996 to 1997 and as president in 1999. Ed has also served on the Board of Directors for the National Organization for Rare Disorders (NORD) in Fairfield, Connecticut, from 1994 to 1999. Ed taught in public schools for 10 years before joining the teaching faculty at Northern Illinois University. He is now professor emeritus.

Elizabeth Joseloff

Job Titles:
  • Vice President, Quality Care & Research
Elizabeth leads PHA's efforts to promote quality care and advance research through PHA's accredited Comprehensive Care Centers, patient registry and research initiatives. Her department oversees health care professional and community educational programming. Before joining PHA, Elizabeth was the director of Integrative Biology at the Cystic Fibrosis Foundation, where she managed basic research and industry-sponsored drug development programs. Her prior experience includes scientific research at biotechnology companies and the National Institutes of Health (NIH). She received a doctorate in cancer biology from the University of Arizona.

Evelyn Sourounis - Chairman

Job Titles:
  • Chairman
  • Member of Corporate Committee

Jaeger Spratt

Job Titles:
  • Advocacy and Treatment Access Coordinator
Jaeger Spratt coordinates the Pulmonary Hypertension Association's grassroots advocacy network. The network empowers people affected by pulmonary hypertension to affect change with elected officials. They also help community members with managing copay assistance, choosing insurance and other treatment-access issues. Jaeger received a Master of Social Work from Virginia Commonwealth University. She has federal policy and legislative advocacy experience with the National Center for Transgender Equality.

Jerry Paton

Job Titles:
  • Archivist PHA 2021 - 12 - 13T12
  • Member of Corporate Committee
The founding of the Pulmonary Hypertension Association (PHA) is a familiar story about four women who made plans around a kitchen table in Florida. But equally important to PHA's history are the husbands, who were also co-founders, visionaries and partners in creating PHA. Jerry Paton, husband of Pat Paton, and one of the founders of PHA died Monday, Jan. 6, 2020, after a long illness. Anyone who is a caregiver knows that the spouse of a patient living with pulmonary hypertension is an equal partner in the "PHight" to thrive. Jerry Paton was a loving husband who supported and championed his wife's commitment to find a cure for PH. Jerry's wife, Pat, was diagnosed with (what was then called) primary pulmonary hypertension in December 1987. After her diagnosis, she was given the standard advice of that time: get your affairs in order, because you will likely live only another six weeks to six months. This critically ill woman had been running two Dairy Queens, handling their finances, and training workers to make Dilly bars, bulb-shaped cones with a perfect twist on top and correct change! After being placed on an experimental drug, Pat's health began to improve; she and her sister, Judy Simpson, focused their attention on building a network of support for people living with pulmonary hypertension. The sisters connected with two other patients coincidentally living in Florida. The four women and their husbands began to lay the groundwork for the organization that would become PHA. Jerry was a member of the founding Board and co-treasurer during PHA's first two years. He served as treasurer for the next six years and then acted as assistant treasurer for several years. He became an emeritus member of the Board of Trustees in January 2008.

Jessie A. Kohler Winninger

Job Titles:
  • Attorney / Panish Shea & Boyle LLP / Santa Monica, Calif.
Jessie began her journey with pulmonary arterial hypertension in 2004 when she was diagnosed after becoming increasingly short of breath. Since then, she has been an active supporter of PHA. Recognizing the importance of her own early diagnosis and the excellent care she received from nearby PH programs, Jessie has been working to raise funds for the Pulmonary Hypertension Care Center initiative since 2012. Jessie is an attorney at Panish Shea & Boyle LLP where she is also responsible for the overall management of the firm. Prior to joining Panish Shea & Boyle LLP, Jessie was a partner at the international law firm of Winston & Strawn LLP where she specialized in labor and employment law. Jessie received a B.A. in Law and Society, magna cum laude, from the University of California, Santa Barbara and her J.D. from the University of Southern California Law Center. In addition to the Board of PHA, where she serves as Chair of the Governance Committee and she has a seat on the Conference Committee. Jessie serves on the Board of Directors of Public Counsel, the largest pro bono law firm in the nation. Jessie lives in Santa Monica, California with her husband, Rick and her children, Ella and Jack.

Jessie Kohler Wenninger

Job Titles:
  • Attorney / Panish Shea & Boyle LLP / Santa Monica, California

Jill Zajac

Job Titles:
  • Professional Education Program Manager
As Professional Education Program Manager, Jill manages PHA's live and online continuing education programs for health care professionals, including PHA's largest biannual signature events, PHA's PH Professional Network Symposium and PHA's International PH Conference & Scientific Sessions. As well, Jill manages all content for PHA Online University, PHA's online CME/CE platform. Jill works to ensure that PHA creates and delivers high-impact educational opportunities to PH-treating health care professionals to increase the knowledge and competence in treating pulmonary hypertension.

Jim Wetherill

Job Titles:
  • Web & Communications Manager X742
Jim manages PHA's websites, email campaigns and other online communications. He supports all PHA departments to use web communications tools to meet their needs. Jim has prior experience in building and managing web communication projects for nonprofit health care organizations.

Judy Simpson

Job Titles:
  • Founding President of United Patients Association
Judy Simpson is the founding President of United Patients Association for Pulmonary Hypertension (later to become the Pulmonary Hypertension Association) and along with her husband Ed, has been a part of PHA from the beginning. Judy was one of the original "kitchen table" founders of PHA with her sister and fellow emeritus Board member, Pat Paton who has had PH since 1987. Judy was a Treatment Investigation New Drug Advisory Committee member for Burroughs Wellcome Company as patient advocate and testified before the Senate Judiciary Committee on the need for research for rare disorders. She was a member of the National Institutes of Health, Heart, Lung and Blood Institute Advisory Council as a patient advocate from 1996-2000. She represented PHA serving as a founding member and Chair of the American Thoracic Society Public Advisory Roundtable. Judy relates that, "PHA has set a new paradigm in the way a patient organization collaborates with physicians, researchers, pharmaceuticals, home health agencies, government, and medical societies, making us a model many support groups now are following." J Judy lives in Holiday Island, Arkansas, with her husband Ed. Judy was a nurse for 53 years and taught pediatric nursing at Kishwaukee Community College in Malta, Illinois; she is now retired.

Karen Fagan A. Fagan - Chairman

Job Titles:
  • Chairman
  • Immediate past Chair
  • Immediate past Chair / Associate Professor and Chief of Pulmonary and Critical Care Medicine
Dr. Fagan is presently a Professor of Medicine and Pharmacology, Chief of the Division of Pulmonary and Critical Care Medicine, and Director of the Pulmonary Hypertension Center at the University of South Alabama in Mobile, Ala. She earned her Bachelors and MD degrees from the University of California at San Diego. She then completed Internship and Residency at the University of Texas Southwestern Medical School Parkland Memorial Hospital. She then completed fellowship training in Pulmonary and Critical Care Medicine at the University of Colorado in Denver where she stayed on as faculty for 19 years before moving to the University of South Alabama Dr. Fagan has been involved with PHA for the past 10 years and serving on the Scientific Leadership Council for the past 6 years. While on the SLC she has served on the research committee, on the editorial board of Advances in Pulmonary Hypertension, and chair of the 2008 Scientific Sessions of the International Conference. She is presently a member of PH Clinicians and Researchers and the Chair-elect of the Scientific Leadership Council. Dr. Fagan has also participated in other international organizations including the American Thoracic Society where she has served as the Program Committee Chair for the Pulmonary Circulation Assembly and as a Council member on the American Heart Association's Council on Perioperative and Critical Care. She was on the future therapeutics task force at the 2008 Dana Point PH World Congress. She has served on many grant review panels including the NIH, AHA, ATS, and private foundations and pharmaceutical industries. She has also twice chaired the Grover Conference on the Pulmonary Circulation. Her professional focus is to advance the scientific understanding and treatment of pulmonary arterial hypertension. She has had active research funding for both basic science and clinical/translational research in PAH as well as directing the only PH center in the Northern Gulf Coast. She lives in Spanish Fort, Alabama with her twin daughters. Dr. Fagan currently serves as the Chair on PHA's Board of Trustees, and serves on the Finance and Audit Committee.

Karen Smaalders

Job Titles:
  • Vice President, Communications & Marketing
Karen leads the Communications and Marketing department, which manages the PHA brand, web, print, social media and e-communications, as well as PHA's marketing and advertising efforts. Karen started her career as a journalist, working for newspapers and magazines. Since then, she has directed communications and marketing for a variety of nonprofit organizations and higher education, including the International Association for the Study of Pain, the American Diabetes Association, the University of Washington and Seattle University. She holds a B.A. in mass communication from the University of California, Davis, and a Master in Nonprofit Leadership from Seattle University.

Katherine Kroner

Job Titles:
  • Vice President, Advocacy and Patient Engagement
Katie leads patient education, patient outreach and support, policy and legislative advocacy, and treatment access for PHA. Katie began her PHA career in 2005 after earning a Master of Social Work from Case Western Reserve University in Cleveland. She previously was senior director, advocacy and treatment access. Before earning her MSW, she worked in a variety of community organizing roles, including as an AmeriCorps VISTA volunteer with the Coalition on Homelessness and Housing in Ohio's Youth Empowerment Program.

Kimberly Jackson

Job Titles:
  • Chairman - Elect
  • Nurse
  • Registered Nurse Coordinator / Pulmonary Hypertension Clinic / University of Kentucky
Kimberly Jackson is the nurse cardiovascular coordinator at the University of Kentucky's Gill Heart and Vascular Institute Pulmonary Hypertension Clinic in Lexington. As the nurse coordinator, Kim develops policies and procedures to assure patients have quality resources and expert care. She educates patients and staff about disease state and therapies and serves as a liaison between patients and specialty pharmacies, pharmaceutical companies and insurance companies. Kim has been working primarily with pulmonary hypertension (PH) patients since 2010 when she started working at Gill. Previously, she was nursing services supervisor at Kentucky Cardiology. She started her career as a bedside nurse She is dedicated to compassionate nursing care, education and advocacy. She aims to provide a high level of care to her patients and improve their quality of life. Kim is chair-elect of the Pulmonary Hypertension Association (PHA) PH Professional Network Committee and immediate past chair of PHPN's Education Committee. She is the PHPN liaison to PHA's Scientific Leadership Committee. She has a Bachelor of Science in nursing from Indiana Wesleyan University and an associate's degree in registered nursing from Eastern Kentucky University.

Laura Hooley

Laura was diagnosed with pulmonary arterial hypertension (PAH) in 2006. She has been a PHA support group leader since 2015 and leads the New Hampshire Support Group with Cherie Caputo. The group's monthly attendance has increased since it began meeting remotely. Laura has presented at PHA on the Road in Providence, Rhode Island, and she is a member of the PHA Covid-19 Task Force. Read more about Laura.

Lauren Intrieri

Job Titles:
  • Communications and Marketing Coordinator X780
Lauren plans, crafts and monitors content on PHA's social media platforms and email campaigns. She collaborates with the communications team to create and execute campaigns with the goal of informing and helping the online pulmonary hypertension community, as well as spreading awareness.

Leonard Schneider

Job Titles:
  • Finance & Data Entry Associate
Leonard works with the PHA's finance team to maintain its donor database. He ensures that constituent information, relationships and merchandise orders are up to date. Leonard also assists with monthly financial reporting and reconciliation.

Linda Busche

Job Titles:
  • Editor
  • Director, Content Strategy and Development
Linda Busche is editor of the Pulmonary Hypertension Association's flagship publications, the weekly newsletter PHA News, and the quarterly magazine, Pathlight. She manages digital and print content creation and strategy, including patient education materials, campaigns and other publications. A seasoned communications professional, she is a former journalist who covered health care, business, education and government. In her previous roles at nonprofit organizations, she has launched several websites and set the direction for external communications to various audiences. She lives in Washington, D.C.

Marcie McGregor

Marcie was diagnosed with idiopathic pulmonary arterial hypertension in 2012. She started the Augusta, Georgia, PHA Support Group in 2015. Marcie loves leading the group, which meetings every other month. She says group is almost like a family because the members are so close. After leading several virtual meetings, Marcie started a vlog about her life with PH for family and friends of people with PH.

Matt J. Granato

Job Titles:
  • President & CEO X741
  • President & CEO, PHA / Silver Spring
  • President & CEO, Pulmonary Hypertension Association / Silver Spring, Maryland
Matt has more than 20 years of experience in nonprofit and health care associations. Before his leadership role at PHA, Matt was CEO of an obstetrics medical society focused on high-risk pregnancies. During his tenure, Matt worked to increase the organization's influence in the obstetric space to meet the needs of providers and their patients. His accomplishments included a new strategic plan that emphasized advocacy, research and provider and patient education. He doubled the organization's revenue, increased resources for patients and specialists, and focused on diversity and inclusion to fill volunteer leadership opportunities and new professional staff positions. Matt also has experience in member services, marketing, and program and service expansions from his 13-year tenure at a transfusion medicine trade association. Matt worked in government relations, international law and human rights before dedicating his professional life to nonprofit associations. Matt has a bachelor's in international relations, a master's in law and a master's in business administration.

Matt Wall

Parent of Child with PH, PH Advocate Commercial Construction Manager Burlington, N.C. Matt lives in Burlington, North Carolina with his wife Jayna, and two sons, Jackson and Jayden. At 14 months old, Jackson Wall was diagnosed with Idiopathic Pulmonary Arterial Hypertension and has been on subcutaneous treatment since he was 19 months old. As a family, the Walls organize and participate in fundraising and awareness raising activities including radiothon interviews, multiple Miracle Hospital campaigns representing Duke Children's Hospital, and multiple local fundraisers. Matt and Jayna organize an annual golf tournament, Driving "Fore" a Cure for PH, and have raised over $235,000 for pediatric pulmonary hypertension research. Matt is the Raleigh-Durham Special Services Group (SSG) leader for DPR Construction, where he leads nearly $70 million of interior commercial construction projects in the Raleigh-Durham area. Matt has led the efforts of building out over 2 million square feet of commercial office space in Raleigh totaling more than $300 million. Prior to DPR Construction, Matt was a project manager with Duke Realty in Raleigh. Matt graduated with a B.S. in Construction Management from Western Carolina University in 2006.

Melisa Wilson

Job Titles:
  • PH Program Coordinator, Florida Hospital Orlando / Orlando, Florida

Melissa White

Job Titles:
  • Director, Individual Giving
Melissa White oversees individual giving for Pulmonary Hypertension Association (PHA)'s development department. She builds relationships to expand the PHA donor base while leading monthly and annual giving programs. She offers strategic, mission-aligned engagement opportunities with PHA partners including individuals, organizations and foundations. Her nonprofit background includes fundraising for the National Foundation for Cancer Research and Susan G. Komen. Prior to this, she was a TV news reporter and anchor, appearing on ESPN. Melissa has a Bachelor of Science in journalism from the University of Maryland and a Certificate in Fundraising Management (CFRM) from Indiana University's Lilly School of Philanthropy.

Michelle Liu

Michelle Liu, M.D., M.P.H., is deputy for the quality directorate at Walter Reed National Military Medical Center, where she focuses on patient safety, occupational safety, infection control and prevention, joint commission accreditation, risk management, performance improvement and credentialing and privileging. Through the COVID-19 pandemic she was recognized for her leadership to ensure the safety of staff engaging in patient care. Dr. Liu earned her medical degree at Brown University in Providence, Rhode Island and a Master of Public Health at the Harvard School of Public Health in Boston, Massachusetts. She completed a surgical internship followed by a tour as a general medical officer in Okinawa, Japan and completed her residency in otolaryngology head and neck surgery at the Naval Medical Center in Portsmouth, Virginia. She is a fellow of the American Association of Otolaryngic Allergists and currently serves as faculty. Dr. Liu and her husband Moses are the proud parents of three children-Ezra, Esther, and Ezekiel. Esther Grace is a double lung transplant recipient (2014) who was diagnosed with idiopathic pulmonary hypertension at age 2 and has traveled with her mother to national and international conferences to speak to physicians and families about the transplant experience. Dr. Liu has enjoyed being a support group leader for the pediatric pulmonary hypertension families in northern Virginia, Washington, D.C. and Maryland.

Mike Robinson

Mike was officially diagnosed with IPAH in 2010 and started leading the Jacksonville Area support group in 2011. Mike's group meets monthly and he provides an agenda at each meeting. Mike is chair of the Northeast Regional Networking Group. I always respect the members and make sure they have time to share and express what is on their mind. At PHA's 2018 International PH Conference, Mike served on a planning committee, spoke on a panel about living with PH as a man and led a support group for men with PH.

Mitchell Koppelman

Job Titles:
  • Retired VP Strategic Planning Minerals Technologies Inc. Principle Consultant - Mineral Solutions
  • Vice President of Strategic Planning for Minerals Technologies Inc
Mitchell Koppelman retired as Vice President of Strategic Planning for Minerals Technologies Inc. (MTI) in 2012. MTI, a $2 billion Fortune 1000 company headquartered in NYC. MTI is a global leader in the manufacture and sale of mineral products and services for the Paper, Steel, Building Products, Glass Consumer and Healthcare, Environmental and Oil and Gas Services. As the founder of a Corporate Development function, and then as head of Strategic Planning, Dr. Koppelman was responsible for developing and executing MTI's strategy, leading Mergers & Acquisition, alliance and licensing activities and providing leadership and oversight on strategic projects and technology initiatives at both corporate and business unit levels. Prior to his roles in Corporate Development and Strategic Planning, Dr. Koppelman led MTI's Global Research & Development, and Technical services (over 150 scientists and engineers) as VP R&D and was North American Business Director (P&L responsibility) for MTI's largest business segment, Paper PCC. Mitchell began his career with MTI in 1990, when it was part of Pfizer, leading PCC marketing. Dr. Koppelman had been with MTI for over 22 years before accepting retirement in 2012, after working for the Georgia Kaolin Company (now part of Imerys), a leading kaolin mineral mining and manufacturing company for 14 years. Since retirement, Dr. Koppelman formed a consulting company, Mineral Solutions & Strategy, focused primarily on mineral and inorganic chemicals, and continues to provide consulting and advisory services to multi-national clients. Mitch, along with his wife Debbie, resided in North Plainfield NJ, where they were the proud parents of two daughters, both who passed away way from Pulmonary Hypertension too soon. As Debbie herself courageously battles PAH, she too retired in 2017 and both relocated to their dream retirement home by the water in Seaside Park NJ. Dr. Koppelman received a BS in Chemistry the State University of New York at Stony Brook (1972) and a Ph.D. from Virginia Tech in Chemistry (Surface Chemistry of Minerals, 1976). He has several mineral related patents, and has authored over 30, peered reviewed technical publications and book chapters. Dr. Koppelman continues to serve on the Advisory Boards of the Chemistry Department and College of Science at Virginia Tech. Dr. Koppelman is currently serving a second term on the PHA Board of Trustees, has a seat on the PHA Finance Committee and is Chair of the PHA Strategic Planning Committee.

Monica Penaranda

Monica was diagnosed with pulmonary arterial hypertension in 1997. She started her pulmonary (PH) journey when she was 16. Along the way she started advocating and holding fundraising events in her hometown. She is the support group leader for the Greater Los Angeles group. Monica loves to bring patients together to help inspire each other. Monica Penaranda was diagnosed with pulmonary arterial hypertension at age 16 when her pregnancy magnified her atrial septal defect (ASD), a congenital defect in the upper chamber of her heart. At the time, pulmonary hypertension (PH) was not a well-known disease but she was lucky that her doctor had recently attended a workshop on PH. At a time when only one medication existed for PH, doctors were able to save her life, but were not able to save her baby. In the 25 years since her diagnosis, Monica has participated in clinical trials and has been treated intravenously with a variety of drugs to dilate her lung vessels. She is currently in a clinical trial with the first implantable pump to treat PH. Monica became active with Pulmonary Hypertension Association when she realized "I could be giving hope to others." She is active in fundraising, support groups and advocacy efforts. She is a support group leader for the Greater Los Angeles Support Group and she worked with the PH community to organize All Hearts on Deck PHor a Cure. She recently took part in a PHA advocacy event on Capitol Hill, where she met with Rep. Jim Banks (R-IN) and Rep. Jillian Gilchrest of Connecticut, among others. Monica and her husband Brandon live in Hacienda Heights, California, with their daughter, Bryce, 22 and son, Bear, 13.

Murali M. Chakinala

Murali M. Chakinala, M.D., FCCP Scientific Leadership Council, Chair-Elect Professor of Medicine, Division of Pulmonary and Critical Care Washington University School of Medicine St. Louis, MO Dr. Murali Chakinala received his undergraduate education at Duke University and then received his medical degree at Vanderbilt University School of Medicine. He completed an Internal Medicine Residency at the University of Texas - Southwestern, and also served as a Chief Resident. He finished his Pulmonary and Critical Care training at Washington University in 2002 and then joined the faculty. He is board certified in Internal Medicine, Pulmonary Medicine, and Critical Care Medicine. He is a Professor in the Department of Internal Medicine and is director of the Pulmonary Hypertension Care Center and co-director of the Hereditary Hemorrhagic Telangectasia (HHT) Center at Washington University. He is a member of the Scientific Leadership Council of the Pulmonary Hypertension Association, chair of Pulmonary Hypertension Care Centers Oversight Committee, and member of the CureHHT's Global Research Medical Advisory Board. His interests include clinical management and clinical research in the areas of pulmonary hypertension, pulmonary arterio-venous malformations, pulmonary thrombo-embolic diseases, and end-stage lung diseases.

Nicole M. Creech

Job Titles:
  • Secretary
Nicole was diagnosed with pulmonary hypertension (PH) due to sickle cell anemia in 2008 at age 36. She continued to work in her long-time career of property management for another three years after diagnosis then opted for early retirement after realizing she would not be able to keep up with the vigorous demands of the industry. In 2016, Nicole became a member of the Pulmonary Hypertension Association (PHA) and resolved to volunteer in an effort to help find a cure and to continue to be empowered by hope and to share that hope with others. Nicole currently leads a support group in Lexington, Kentucky, where she resides with her Yorkshire terrier, Jager. She is in her second term as a Support Group Leader Advisory Board member and she is a patient representative on the PHA Registry (PHAR) Steering Committee. Nicole is also a member of PHA's Legacy of Hope Society. Nicole has served on several panels for patient-led sessions at PHA's International Conference and Scientific Sessions in Dallas (2016) and Orlando, Florida (2018) as well as PHA on the Road - Pittsburgh. Nicole moderated the Journey's Luncheon at Conference in Orlando and has been a speaker at employee training programs for specialty pharmacy, Humana in Cincinnati. In addition to joining the PHA Board of Trustees, she continues to assist PHA with the support group leader mentorship program and regional support group leader trainings. Nicole was featured as a PH patient spotlight in PHA's quarterly publication, Pathlight, (September 2018) and has completed an editorial piece for the Gill Heart and Vascular Institute at the University of KY, UK Healthcare (May 2019). She is also the administrator for two PH-related Facebook groups, and is currently working on a blog project.

Nikole Nichols

Nikole was officially diagnosed with Idiopathic Pulmonary Arterial Hypertension in 2011. She became a support group co-leader in 2019 for the Northern Nevada area. Meeting on a quarterly basis, the group has thrived under the virtual meeting format. The members of this group are spread out over hundreds of miles. Many group members live in areas where there are no other patients. Nikole enjoys bringing the PH community together. As the group grows, she hopes to expand activities and gatherings.

Pat Ofori

Pat was diagnosed in 2011 with PH and scleroderma. She leads the Lower Westchester County PH support group and is chair of the Mid-Atlantic Regional Networking Group. From April to December each year, her support group meets at local restaurants in Westchester County. Pat always uses an agenda to stay organized and focused and list PHA information and resources. Her biggest strengths as a leader include problem solving, sharing resources and being attentive to group members.

Pat Paton

Job Titles:
  • Member of Corporate Committee

Pat Reilly

Job Titles:
  • Meeting Planner X803
In his role as a Meeting Planner, Pat manages full logistics for PHA On the Roads, Corporate Committee, Board, Scientific Leadership Council, and the PHCC/PHPN committee meetings. He also manages exhibits for the Biannual Conference as well as the Conference/Symposium mobile apps. Pat also partners with the Senior Manager, Meeting & Conference Planning on a variety of other logistics.

PH Nurse

Job Titles:
  • Coordinator - Heart and Vascular Center, University of Iowa
Traci Stewart, RN works as a PH Nurse Coordinator - Heart and Vascular Center, University of Iowa. She coordinates patient care as patients transition from the inpatient and outpatient settings. Traci has over twenty years of clinical expertise in management of pulmonary hypertension (PH) and heart failure (HF) patients. Her focus is providing patient, nurse, and community education. She facilitates a regional PHA support group and organizes and presents education on PH/HF disease management to patients and healthcare providers in the community. She serves as a nurse leader within the University of Iowa by being actively involved in development of new treatment protocols, in-servicing staff nurses, and providing HF and PH education during nurse orientation. She has been a member of the PH Professional Network (PHPN) since 2001 and has presented PH and HF disease management and education strategies. She is excited to collaborate with PHA to promote ongoing quality care and improved outcomes for the PH population. Traci is a past Chair of the PHPN Executive committee and past Co-Chair for PHA's 2016 and 2018 PH International Conference and Scientific Sessions Planning Committee.

PHA Mourns

Job Titles:
  • Passing of Co - Founder, Jerry Paton
The founding of the Pulmonary Hypertension Association (PHA) is a familiar story about four women who made plans around a kitchen table in Florida. But equally important to PHA's history are the husbands, who were also co-founders, visionaries and partners in creating PHA. Jerry Paton, husband of Pat Paton, and one of the founders of PHA died Monday, Jan. 6, 2020, after a long illness. Anyone who is a caregiver knows that the spouse of a patient living with pulmonary hypertension is an equal partner in the "PHight" to thrive. Jerry Paton was a loving husband who supported and championed his wife's commitment to find a cure for PH. Jerry's wife, Pat, was diagnosed with (what was then called) primary pulmonary hypertension in December 1987. After her diagnosis, she was given the standard advice of that time: get your affairs in order, because you will likely live only another six weeks to six months. This critically ill woman had been running two Dairy Queens, handling their finances, and training workers to make Dilly bars, bulb-shaped cones with a perfect twist on top and correct change! After being placed on an experimental drug, Pat's health began to improve; she and her sister, Judy Simpson, focused their attention on building a network of support for people living with pulmonary hypertension. The sisters connected with two other patients coincidentally living in Florida. The four women and their husbands began to lay the groundwork for the organization that would become PHA.

Ramona Doyle

Job Titles:
  • Clinical Professor of Medicine / Pulmonary Hypertension Clinic
  • Clinical Professor of Medicine at UCSF
Currently Dr. Doyle is Clinical Professor of Medicine at UCSF where she works as an attending physician in the Adult Pulmonary Hypertension Clinic at Parnassus as well as in the Adult PH Clinic at Zuckerberg San Francisco General Hospital. Dr. Doyle also works as a consultant with business, academic, government and non-profit entities to promote the advancement of innovative science and therapies in the service of patients with serious illnesses. Most recently Dr. Doyle was Chief Medical Officer at Blade Therapeutics where she developed and lead the translational and clinical strategy for the company in diseases involving fibrosis. Prior to Blade she served as VP of Therapeutics at the California Institute of Regenerative Medicine (CIRM), a state agency, where she lead a team of 6 senior science officers working to advance stem cell-based therapies across multiple therapeutic areas. Dr. Doyle was a Senior Group Medical Director in Respiratory and Allergic Diseases at Genentech where she built and directed a team of clinical scientists and physicians in the US, the UK and China and helped get the first biologic medicine approved for a severe, debilitating skin condition. Prior to Genentech she worked at Gilead where she was responsible for the program in pulmonary hypertension. Before working in biotech Dr. Doyle was a full-time faculty member at Stanford University for 12 years where she was the Medical Director of the Lung and Heart-Lung Transplantation Program and founded the PH program. Much of her professional career has been spent working with patients with PH as well as with those with other advanced heart and lung diseases. She has served on the United Network for Organ Sharing (UNOS) Ethics Committee, and the Board of the American Lung Association, California Chapter. During her time at Stanford a generous donation from an anonymous family affected by PH led to the establishment of The Vera Moulton Wall Center for Pulmonary Vascular Disease, a center for research, education and clinical care of adults and children, which she Co-Directed. Dr. Doyle received her M.D. degree at Emory University in Atlanta, GA and trained in Internal Medicine and Pulmonary and Critical Care Medicine at UCSF. Dr. Doyle served on the Scientific Leadership Council of the PHA in the past and is currently serving on the PHA Board of Trustees, and has a seat on the Development Committee.

Randall McLeod

Job Titles:
  • Associate Director, Database & Finance
Randall oversees PHA's donor database, The Raiser's Edge. Randall serves PHA by ensuring all data is entered in a timely and accurate manner, and maintaining accurate records for all constituents. Randall assists the staff with any issues related to the database, and trains staff on how to use the database to serve their needs most effectively.

Ronald J. Oudiz

Job Titles:
  • Scientific Leadership Council, Immediate past Chair / Professor of Medicine
Ronald J. Oudiz, MD is Professor of Medicine at the David Geffen School of Medicine at UCLA, Director of the Liu Center for Pulmonary Hypertension, and Clinical Director of the Wasserman Cardiopulmonary Exercise Laboratory at Harbor-UCLA Medical Center in Torrance, Calif. He was introduced to PH by Bruce Brundage, MD, in the early 1990s and owes the success of the Harbor-UCLA PH Clinic to Bruce, as well as to his caring and giving coordinators and nurses, Joy, Germaine, Ruth and the late Daisy. He "volunteered" to be the medical editor of the Survival Guide and shares in the pride of contributing to this work. Ron's beautiful wife and two wonderful children keep him going as chapters keep rolling in for review. In 2011, PHA awarded him with the Physician of the Year Award, and in 2015 he received the 2015 Legacy Award from PHA for his contributions to the pulmonary hypertension field.

Sarah K. "Sally" Maddox

Job Titles:
  • Archivist PHA 2021 - 12 - 13T12
  • Member of Corporate Committee
  • PHA 's Education Chair
We are deeply saddened by the passing of PHA Board of Trustees member and longtime volunteer Sally K. Maddox on Saturday, Dec. 1, 2018, in Atlanta. Diagnosed with idiopathic pulmonary hypertension at the age of 21 in 1990, Sally was a dedicated volunteer and passionate supporter of the Pulmonary Hypertension Association (PHA) since its early years. In 1997, she became leader of the Greater Atlanta Georgia support group. Her impact on the pulmonary hypertension (PH) community led to her being named one of PHA's Periwinkle Pioneers - a select group of individuals and groups responsible for advancing care for individuals with PH and helping to change the history of this disease. Sally was first elected to the PHA Board of Trustees in 1999. She took a brief break from the Board in 2009 and was re-elected in January 2010, 2013 and 2016. At the time of her passing, she was serving as the secretary of the Board. Attending PHA's biennial International PH Conference and Scientific Sessions was particularly meaningful for Sally. She attended PHA's first Conference in 1994 and every Conference since, most recently serving as a volunteer for the 2018 International PH Conference and Scientific Sessions. Attending Conference became a family affair with her mother Mary volunteering during the event. Sally celebrated a major milestone with the 15th Georgia Fun Walk recently. As the founder and event organizer, Sally recalled starting the walk in 2004, after returning from PHA's 2004 Conference and experiencing the loss of her good PHriend two weeks later. Sally and the local PH community banded together to host the walk in memory of their fellow support group member. "We just did it," Sally said. "We had never done anything like this before and now continue each year because it is an opportunity to raise awareness and money for a cure," she remembered. "Don't be afraid that you'll fail." Since 2004, Sally's fun walk raised more than $235,000. As PHA's education chair, Sally created PHA News, serving as editor in its early years. During a PHA Board meeting, when PH treatments to extend life did not yet exist, she said, "I don't know if this decision will help me, but I believe it will help the next generation of patients. We should do it." She also served as a reviewer of Pulmonary Hypertension: A Patient's Survival Guide and was the 2015 keynote speaker of On the Road - Atlanta. In 1996 Sally married Shelby, a former member of the Army Reserve who served a tour in Iraq, and became a mother to his son, Brandon, who is an aspiring singer/songwriter. She was mother as well to her Chiweenie, aka mini Doberman Slash Maddox. Sally also was a huge Jimmy Buffet fan. Sally taught math for more than 20 years at the Floyd County Transitional Academy. She graduated with her master's and specialist degrees in secondary mathematics education from the University of West Georgia. In 2018, she completed her Educational Doctorate in Leadership for Learning with a secondary mathematics concentration from Kennesaw State University.

Seker Anderson

Job Titles:
  • Administrative Assistant, Patient & Caregiver Programs
Seker Anderson provides administrative support within PHA's Patient & Caregiver Programs department. He also resources PHA patient/caregiver outreach events.

Tess Esposito

Job Titles:
  • Vice President, Finance X751
Tess provides strategic oversight and collaborative leadership for PHA's finance and accounting functions. She leads the finance department and is responsible for financial management, budgeting, investments, treasury, accounting systems, information technology, contracts and grant management. Her 20-plus years of experience as a chief financial officer for U.S. and international nonprofit organizations includes financial and grant management for the Association of Maternal and Child Health Programs. Tess has Bachelor of Science in accounting and a Master's of Business Administration in international management from Thunderbird School of Global Management at Arizona State University.

Tony Lahnston - Treasurer

Job Titles:
  • Treasurer
  • Treasurer & Chair - Elect
After graduating from Boston University and attending Oxford University, Tony Lahnston began his career as a commercial banker in the Boston area. He spent eight years in small business and middle market lending for Bank of New England and Community National Bank, leaving that career in 1995 as a Vice President of Commercial Lending. Tony then embarked on 20+ years as a manufacturing executive managing everything from small $10 million family-owned businesses up to $700 million international companies in the food industry. He is currently the President of Curaleaf in Maryland. In September 2007, Tony's niece, Marchelle Corbett passed away from complications related to pulmonary veno-occlusive disease (PVOD), a rare form of PH. During her final days in the hospital in Portland, Maine, Tony stayed in a local hotel and found a flier for a Pulmonary Hypertension Association golf tournament fundraiser put on by a local support group. Upon his return home, Tony pulled out that flier, visited the PHA website for the first time and discovered a great way to keep the memory of Marchelle alive. After setting up a fundraising website, Tony reached out to friends, family, business associates and running buddies and quickly raised over $30,000! Tony was invited to attend the 2008 PHA Conference and Scientific Sessions in Houston and was overwhelmed with the welcome from PHA and the wonderful patient community. Tony previously served on the PHA Board of Trustees for nine years and is now coming back after a long-deserved break. He has also participated on numerous PHA committees including the Governance, Development and Investment committees as well as the Finance and Audit Committee, where he served as Chair and assumed the role of Treasurer in 2014. Tony resides in Windermere, Florida, with his wife Ruth. His two daughters, Abigail and Victoria, graduated from Windermere Preparatory School with International Baccalaureate diplomas and now attend the University of Florida.

Tonya Hall

Job Titles:
  • Director, Fundraising Events

Zan Laughlin

Job Titles:
  • Director, Quality Care & Research
Zan Laughlin manages the Pulmonary Hypertension Association (PHA)'s health care professional education programs, including continuing education and practice management, and supports PHA's research initiatives. Before joining PHA, she worked for the Milken Institute School of Public Health at The George Washington University, participating in malaria and iron deficiency research at the Centers for Disease Control and Prevention. Zan has a Bachelor of Science in human nutrition from Colorado State University and a Master of Public Health in epidemiology from The George Washington University.