CURE SMA - Key Persons


Adi Rappoport

Job Titles:
  • Member of the View
  • Member of Committee

Adrian Krainer

Job Titles:
  • Professor at the Cold Spring Harbor Laboratory SMN Splicing

Amber Bosselman

Job Titles:
  • Member of the View

Amy Thomasson

Job Titles:
  • Vice President, Marketing and Communications

Arthur H. Burghes

Job Titles:
  • Professor of Molecular and Cellular Biochemistry at the Ohio State University SMA Biology and Animal Models
  • Professor, the Ohio State University, SMA Biology

Audrey Lewis

Job Titles:
  • Member of the View
  • Member of Committee

Barbara Trainor

Job Titles:
  • Member of the View
  • Member of Committee

Brad Nunemaker - Treasurer

Job Titles:
  • Treasurer

Brianna Gross

Job Titles:
  • Member of the View
  • Member of Committee

Carolyn Barrett

Job Titles:
  • Member of the View

Charlotte Sumner

Job Titles:
  • Associate Professor, Johns Hopkins University, SMA Biology / Neurology
  • Professor of Neurology and Neuroscience, Johns Hopkins School of Medicine

Chien-Ping Ko

Job Titles:
  • Professor, University of Southern California, SMA Biology / Neurobiology

Chris Almberg

Job Titles:
  • Vice President, Compliance

Christine Brideau

Job Titles:
  • Vice President, in Vitro Biology, WuXi AppTec, Preclinical Drug Development

Colleen McCarthy O'Toole

Job Titles:
  • Senior Vice President, Community Support

Dione Kobayashi

Job Titles:
  • Executive Scientist and Rare Disease Drug Developer, Myonexus Therapeutics, Inc., Preclinical Drug Development

Fred Troutman

Job Titles:
  • Nurse Educator, Professor Emeritus, Walla Walla University

Gillian Mullins

Job Titles:
  • Secretary

Jackie Glascock - Chairman

Job Titles:
  • Chairman
  • Vice President, Research

Jamie Gibson

Job Titles:
  • Chief Development Officer

Jasbir Singh

Job Titles:
  • President, Jasin Discovery Solutions, Medicinal Chemist

Jay Chung

Job Titles:
  • Member of the View
  • Member of Committee

Jennifer Hubbell

Job Titles:
  • Occupational Therapist, Cincinnati Children 's Hospital Medical Center

Jesse Aynes

Job Titles:
  • Vice President, Development and Events

Jim Inglese

Job Titles:
  • Head, Laboratory of Assay Development & Screening Technology ( ADST ), National Center for Advancing Translational Sciences, Assay Development and High - Throughput Screening

Joe Wiseman

Job Titles:
  • Member of the View
  • Member of Committee

Jose Flores

Job Titles:
  • Member of the View

Joseph W. Lewcock

Job Titles:
  • Head of Biology Discovery, Denali Therapeutics, Preclinical Drug Development

Julie Parsons

Job Titles:
  • Pediatric Neurologist, Children 's Hospital Colorado

Karen McRory-Negrin

Job Titles:
  • Member of the View
  • Member of Committee

Katherine W. Klinger

Job Titles:
  • Translational Sciences Global Head, Sanofi S.a

Kenneth Hobby - President

Job Titles:
  • President

Kyle Derkowski

Job Titles:
  • Member of the View

Lee Rubin

Job Titles:
  • Director of Translational Medicine, Harvard Stem Cell Institute, Neuronal Assay Development and High - Throughput Screening

Lisa Belter

Job Titles:
  • Vice President, Research Data Analytics

Marc Ginsky

Job Titles:
  • Member of the View
  • Member of Committee

Mark Moore

Job Titles:
  • Member of the View
  • Member of Committee

Marline Pagan - COO

Job Titles:
  • Chief Operating Officer

Mary Curry

Job Titles:
  • Vice President, Clinical Research and Care

Mary Schroth - Chairman

Job Titles:
  • Chairman
  • Chief Medical Officer

Maynard Friesz

Job Titles:
  • Vice President, Policy and Advocacy

Michael Vellard

Job Titles:
  • Vice President of Research, Ultragenyx Pharmaceutical, Preclinical Drug Development

Nick Farrell - Chairman

Job Titles:
  • Chairman

Paula Barrett

Job Titles:
  • Member of the View
  • Member of Committee

Perry Shieh

Job Titles:
  • Neurologist, UCLA Medical Center

Peter Hodder

Job Titles:
  • Executive Director of Discovery Research, Amgen Inc., Assay Development and High - Throughput Screening

Rashmi Kothary

Job Titles:
  • Professor, Department of Cellular and Molecular Medicine at the University of Ottawa. Deputy Scientific Director, Ottawa Hospital Research Institute

Richard Kravitz

Job Titles:
  • Pediatric Pulmonologist and Sleep Medicine Physician, University of Virginia

Richard Rubenstein

Job Titles:
  • Member of the View
  • Member of Committee

Samuel Rosenfeld

Job Titles:
  • Orthopedic Surgeon, CHOC Children 's Hospital

Sandy Wimsatt

Job Titles:
  • Member of the View
  • Member of Committee

Shannon O'Brien

Job Titles:
  • Vice President, Community Support

Stephen Bingman

Job Titles:
  • Member of the View

Stephen J. Kolb

Job Titles:
  • Associate Professor of Neurology and Biological Chemistry & Pharmacology, Ohio State Wexner Medical Center Molecular Pathology of SMA, Biomarkers, and Clinical Trials

Tom Crawford

Job Titles:
  • Associate Professor of Neurology and Pediatrics at the Johns Hopkins School of Medicine Child Neuromuscular Disorders

Umrao Monani

Job Titles:
  • Professor of Neurology ( in Pathology and Cell Biology ), Endowed Chair, Pediatric Neurological Sciences, Center for Motor Neuron Biology & Disease, Columbia University SMA Biology and Animal Models