UNLOCK GENETICS

This website is brought to you by Retina UK. Retina UK is a charity that works for people affected by inherited sight loss conditions including retinitis pigmentosa, Stargardt disease, Usher syndrome, cone-rod dystrophy and choroideremia. The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning. It was created in response to our Retina UK Sight Loss Survey in 2019, when 43% of the 1,000 respondents told us they were ‘not aware' of genetic testing or that they were ‘aware of it but it is not available to me'... The information and support we provide helps people lead better lives, today. We ensure no-one with inherited sight loss need feel alone.

Also known as: Retina UK

Registration numbers: 1153851 (W)

Primary location: Buckingham United Kingdom