HEARTWORKS GALA
Updated 3 days ago
- Age: 27 years
- ID: 53710579/2
22 Manhasset Avenue Port Washington, NY 11050
We provide a supportive community for everyone affected by Marfan syndrome, Loeys-Dietz, VEDS, and related conditions...
The Foundation serves people worldwide who have Marfan, Loeys-Dietz, VEDS, and other genetic aortic conditions. We build international partnerships to advance research, provide medical and patient education, and support individuals living with these conditions and their families...
We hold many events from coast-to-coast and online throughout the year to increase awareness, create connections, provide education, and raise critical funds to support our work.