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  • haemophiliawales.org
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Haemophilia Wales is a registered charity number 1158941 based in Wales and run solely by volunteers with Haemophilia or affected by Haemophilia, and is for the benefit of everyone with haemophilia and other bleeding disorders. Haemophilia Wales..
Relevance: 24.092287
  • www.haemophiliacentral.org
Haemophilia Central is a new service designed as a focal point for the haemophilia community, providing key information for patients and doctors alike. In the coming weeks and months we will be bringing you all the latest haemophilia news, a..
Relevance: 23.651062
  • haemophiliaacademy.com
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The Haemophilia Academy is led by a distinguished Faculty of haemophilia experts from around the world... The Haemophilia Academy is an annual, haemophilia-focused educational event run by international experts in haematology...
Relevance: 23.537361
  • redefinehaemophilia.com
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ReDefine Haemophilia is an F. Hoffmann-La Roche Ltd. initiative designed to inform and support those living with haemophilia, or caring for someone with haemophilia... Living with haemophilia can be full of ups and downs and it's not uncommon for..
Relevance: 23.366226
  • haemophilia.mu
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The Haemophilia Association of Mauritius (HAM) is a Non-Governmental Organisation working on a national scale to improve and sustain treatment of people with haemophilia and other inherited bleeding disorders in Mauritius... The Haemophilia..
Relevance: 22.345778
  • haemophiliaacademy.com
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To address this need, the annual Haemophilia Academy was established. The programme comprises a 4.5-day, CME-accredited educational event, and has been held each year in Edinburgh since 2008... A 2007 survey of haematologists revealed that there are..
Relevance: 22.055515
  • www.be-coag.be
Whatever the type, the severity of haemophilia is determined by the level of clotting activity of factor VIII or factor IX in the blood. There are three levels of severity: mild, moderate, and severe. The type and level of severity of the disease..
Relevance: 21.07743
  • www.southernhaemophilianetwork.org
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The Southern Haemophilia Network (SHN) is the first network of its kind in the UK. It has been commissioned, by NHS England - Wessex, for the purpose of delivering a consistent standard of care to patients with inherited and acquired bleeding..
Relevance: 20.834349
  • haemoqol.de
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The Quality of life assessment instrument for children and adolescents with haemophilia..
Relevance: 20.387136
  • pednet.eu
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In the early 2000s, the idea came up to start a PedNet Registry to collect data of the children treated at our centres which shifted the focus more towards research. A first study that showed the potential of international collaboration was the..
Relevance: 20.267252
  • www.homoeopathyinhaemophilia.com
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The project "HOMOEOPATHY IN HAEMOPHILIA" started in December 2007 Recognized by National Institute Of Immunohaematology, K.E.M Hospital ,Parel, Mumbai with the aim to aid people suffering from Haemophilia, during bleeding and non-bleeding phase and..
Relevance: 20.245827
  • mskhemophilia.org
The Novo Nordisk Haemophilia Foundation (NNHF) is a grant-making non-profit organisation. At the foundation, we strive to improve access to care for people with haemophilia and allied bleeding disorders... Together with our local and global..
Relevance: 20.055807
  • www.hep-test-q.org
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The HEP-Test-Q is a short and well-accepted questionnaire, assessing subjective physical performance of patients with haemophilia, which might be combined with objective assessments to reveal aspects, which cannot be measured objectively, such as..
Relevance: 19.911034
  • access-to-insight.com
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Novo Nordisk, a healthcare company with a leading position in haemostasis management, is strongly committed to supporting haemostasis research and education... Access to Insight, the Novo Nordisk Haemostasis Grants Awards Initiative, supports..
Relevance: 19.887463
  • www.brucecalc.net
BRuCe is a calculator for children with haemophilia and their families. It provides information about how changes in patterns of physical activity influence risk of bleeds. The risk of bleeds is expressed in terms of expected number of bleeds in a..
Relevance: 19.18461
  • www.uahard.org
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Home therapy gives people with haemophilia round-the-clock access to clotting factor concentrates, and ensures treatment of early symptoms, thus preventing pain, dysfunction and duration of disability, and significantly reducing the incidence of..
Relevance: 19.001621
  • web.euhass.org
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EUHASS is a pharmacovigilance program to monitor the safety of treatments for people with inherited bleeding disorders in Europe. Haemophilia treatment centres report adverse events directly to the EUHASS website and regular surveillance reports are..
Relevance: 18.364883
  • www.registry.cz
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The Institute of Biostatistics and Analyses Ltd (IBA), a spin-off company of the Masaryk University, focuses on research projects and provides relevant services, particularly in the areas of analysis of biological and clinical data, organisation and..
Relevance: 17.343437
  • haemophilia.org.uk
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The Haemophilia Society (THS) is the only UK-wide charity and free membership organisation for everyone affected by a bleeding disorder. We have over 5,000 members... At THS we want to empower everyone affected by a bleeding disorder to live life to..
Relevance: 16.420622
  • www.hourofbloodsweattears.com
Little Bleeders was founded by Alex Dowsett to encourage haemophiliacs to engage in sport and movement as a way to manage their condition... The Haemophilia Society helps people with genetic bleeding disorders lead fulfilling lives, make informed..
Relevance: 16.236835
  • www.haemophilia.org.nz
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Improving the lives and long-term outcomes of people affected by bleeding disorders since 1958... HNZ supports and represents people and families suffering from haemophilia and other related bleeding disorders. Find out more about our foundation..
Relevance: 16.236668
  • www.coagulationassays.com
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The coagulationASSAYS.com portal provides high-quality education about laboratory screening tests used to diagnose and monitor common bleeding disorders... Education on assays such as aPTT, chromogenic and others and their use to diagnose and..
Relevance: 15.682742
  • hemophilia.bayer.com
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Kovaltry is indicated for the treatment and prophylaxis of bleeding in patients with haemophilia A (congenital factor VIII deficiency) for adults, adolescents and children of all ages... Learn about KOVALTRY - a recombinant antihemophilic factor..
Relevance: 14.545085
  • chironmed.co.uk
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I am a medical writer with significant cell and gene therapy expertise and the founder of Chiron Medical Communications Ltd, an independent writing consultancy... I have worked for over five years as a specialist technical writer on client projects,..
Relevance: 14.543225
  • www.obsiti.de
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The primary objective of the ObsITI study is to evaluate and document data on the success rate of ITI in prospective and retrospective haemophilia A patients with newly developed or already existing FVIIIinhibitors, including patients with risk..
Relevance: 14.407507
  • www.molecular-haemostasis.de
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The parts of our group providing diagnostic services are working at the Universities of Frankfurt and Wuerzburg in close cooperation with Prof. Müller-Reible (Division of Molecular Genetics, Biocenter Würzburg). We have established an overregional..
Relevance: 13.954454
  • www.motivate-study.com
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MOTIVATE is a multicentre, investigator-initiated study to capture different approaches to the<br /> management of patients with haemophilia A inhibitors. MOTIVATE is registered as a noninterventional study in the US and as a low-interventional,..
Relevance: 13.707872
  • www.copybush.com
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Our German Shepherds enjoy over 10 acres in which to run and play freely which helps to ensure they are fit in both body and mind. We are one of the few kennels in the UK to train their German Shepherds for both the Breed ring and for Schutzhund. All..
Relevance: 13.550119
  • www.kingsthrombosiscentre.org.uk
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The King's Thrombosis Centre forms part of the Department of Haematological Medicine, an Academic Clinical Unit providing haematology laboratory and clinical services within King's College Hospital. King's College Hospital is a major London teaching..
Relevance: 13.377571
  • novoholdings.dk
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Novo Nordisk is a global healthcare company with more than 100 years of innovation and leadership in diabetes care. Novo Nordisk also has leading positions within haemophilia care, growth hormone therapy and hormone replacement therapy... The Novo..
Relevance: 13.246438