Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of national Sarcoma Patient Advocacy Organizations. Today, more than 60 member groups from 5 continents gather under the umbrella of SPAGN, providing a common, international and..
Sarcomas are rare cancers that grow in the bone and soft tissues of the body, such as muscles, fat, and other connective tissue. Sarcomas make up about 1% of adult cancers and about 12% of pediatric cancers. The Sarcoma Coalition, established in..
CanSaRCC is supported by philanthropic funding through the Princess Margaret Cancer Foundation... CanSaRCC's vision is to improve the outcome of patients with sarcoma. Our mission is to develop a comprehensive bioinformatics database and national..
SARC (Sarcoma Alliance for Research through Collaboration) is a U.S.-based 501 (c)(3) non-profit cancer research organization dedicated to the development and support of research for the prevention, treatment, and cure of sarcoma - a cancer of the..
Our vision: We want to implement a novel health care ecosystem for sarcoma patient care based on quality and ethical transparency... Our strategy: We want to set standards in defining and assessing quality in sarcoma health care with the added bonus..
The mission of Global Patient Network is to make a positive difference in the lives of spine patients by helping them to educate themselves about the best possible treatments available. Global Patient Network offers caring and responsive patient..
International Kidney Cancer Coalition (IKCC) is the only global patient-driven organisation focused on kidney cancer. Initiated in 2009 and incorporated in 2014, we are a global network of Partner Organisations working together to reduce the burden..
Mike and his Patient Advocacy Strategies team are experts in providing all the tools for patient-driven advocacy campaigns. They add value to all areas of the drug development process and are professional at ensuring the patient voice is at the..
The London and South East Sarcoma Network (LSESN) was established to ensure that patients from London and the South East of England who have been diagnosed with or have a suspected sarcoma can access world-class diagnostic and treatment services at..
WECAN now brings together over 20 umbrella cancer patient advocacy organizations active in Europe. As WECAN grows, and new members join the network, there are further opportunities to be realised. Through learning from shared experiences and..
The Global Patient Advocacy Coalition for Headache (GPACH) is a non-profit organization registered in Belgium. It is formed by headache specialists and patients all volunteering their time and collaborating together to advance patient-centered..
The Acute Leukemia Advocates Network (ALAN) is an independent global network of patient organisations, dedicated to changing outcomes of patients with acute leukemias by strengthening patient advocacy in that area. We aim to maximise the capacity of..
Sarcoma Strong is an organization founded by Matthew R. DiCaprio, MD, a practicing Musculoskeletal Oncologist who wanted to do more for his local sarcoma family. Our goals are simple. We want to be able to support our sarcoma families at every step..
My goal is to provide accessible information that makes patients feel informed, empowered, and less alone. I make appearances on local and national media to educate and improve healthcare literacy... I am always available to share my knowledge on..
We're a leading independent healthcare consultancy. Our purpose is enabling and inspiring healthy lives through Public Affairs, Communications and Patient Advocacy... We specialise in connecting the best of communications, patient advocacy and..
Dallas Sarcoma Associates is a regional referral center for the treatment of various complex orthopaedic problems, including bone and soft tissue tumors, musculoskeletal infections, and bone and joint reconstructions... Dr. Jorge Casas-Ganem is the..
A network of 131 chronic myeloid leukemia (CML) patient organizations from 96 countries on all continents, the CML Advocates Network serves as a resource for leaders of CML patient groups. As a patient and caregiver-led organization, it was..
Soft tissue and bone cancers are a rare and diverse group of tumors collectively known as sarcoma. At the UCSF Sarcoma Center, we take a collaborative and multidisciplinary approach to combat these complex cancers. Our dedicated team of sarcoma..
GoMyMRI operates as an administration platform and partners with a network of nationwide Imaging facilities. We handle the HIPPA compliant onboarding process, patient coordination, patient scheduling, advocacy, and billing...
Red Thred Solutions is a patient engagement consultancy firm dedicated to helping biopharmaceutical, biotech, and patient advocacy organizations develop global strategies for integrating patient voice with clinical innovation...
Sarcoma, a complex form of cancer, requires a specialized approach. At the Sarcoma Oncology Center, we are dedicated to providing comprehensive and innovative care for sarcoma patients... Yes, the Sarcoma Oncology Center provides extensive access to..
DNA Compass leverages existing earth mapping infrastructure to enable local and regional genomic data management. This innovative approach creates a secure, federated network for sharing and analyzing genetic data... DNA Compass uses advanced..
Sarcoma UK is a national charity that funds vital research, offers support for anyone affected by sarcoma cancer and campaigns for better treatments. It is the only cancer charity in the UK focusing on all types of sarcoma... We are a relatively..
GlobalSkin is working in regions and countries to provide advocacy training and support, and through its Global Research on the Impact of Dermatological Diseases (GRIDD) project, will provide supportive data to local organizations to improve their..
ASC provides strategies and solutions for all areas of healthcare commercialization, reimbursement and access support, with particular expertise and extensive network in companion/complementary Dx; precision medicine; patient advocacy and..
The Research Advocacy Network advances patient-focused cancer research by fostering interaction among advocates, researchers and related organizations... Research Advocacy Network offers numerous publications and tutorial resources to advocates at..
The Patient Partnership Index is a ground-breaking initiative from specialist health communications agency OVID Health... The Patient Partnership Index is run by OVID Health the leading global agency in patient advocacy & engagement... The..
The Global Health Advocacy Incubator (GHAI) and our global network of partners use the power of advocacy to save lives and create healthier futures... GHAI supports civil society organizations and advocates in more than 40 countries to pass public..
The Operating Room Global (TORG) is dedicated to advancing surgical care and enhancing healthcare outcomes worldwide. We foster a global network of surgical professionals, providing education, research opportunities, and advocacy for patient safety,..