PORPHYRIA

Updated 172 days ago
  • Age: 22 years
  • ID: 4263473/124
136 Devonshire Rd Durham City DH1 2BL
Our primary aim is to support and educate patients, relatives and clinicians about porphyria, and promote research... It was set up in 1999 by a group of patients and relatives who felt isolated and had experienced difficulties due to their porphyria, and had found there to be a general lack of understanding and information available... Porphyria refers to a group of disorders that affect the production of heam. The British Porphyria Association (BPA) is a national charity that supports patients and works to improve overall understanding of porphyria and how it affects affect lives of patients.
Primary location: City United Kingdom
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Interest Score
1
HIT Score
0.50

Treasurer
Domain
porphyria.org.uk

Actual
porphyria.org.uk

IP
79.170.44.78

Status
OK

Category
Company, Other
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