EPINET

We are currently using the database to set up patient registries, focusing on particular patient groups, with information being collected prospectively. We are enrolling both adults and children in the database. This data will potentially be available in a de-identified form for review by EpiNet investigators. Personal and/or identifying data is only accessible by doctors involved in the patient's on-going clinical care... We have produced a teaching module regarding the 2017 ILAE seizure classification. Investigators are invited to review brief case histories and determine what type of seizures the patients have... We have established rules by which we have agreed to collaborate and a steering group who will oversee the development of the project. The current steering group is led by Dr Peter Bergin.