USHERSYNDROOM

Stichting Ushersyndroom is a non-profit organisation. We are dependent on donations to cover the costs made by the foundation. Stichting Ushersyndroom entirely depends on volunteers who all have an affinity for or a relationship with our target groups. Therefore all proceeds from sponsoring, legacies and donations fully go to the objective of the foundation... Stichting Ushersyndroom [Usher Syndrome Foundation] is a network organization. We are all people living with Usher Syndrome, supported by the people around us. We fight for a treatment and for a better quality of our lives... Usher syndrome, if you slowly become deaf and blind. The Stichting Ushersyndroom [Dutch Usher Syndrome Foundation] raises funds to make Usher Syndrome treatable. Will you help?

Registration numbers: 55 61 3004 (W)