| Date | Description |
|---|
| 2024-09-19 |
delete otherexecutives Chrystelle Bougault |
| 2024-09-19 |
delete otherexecutives Joslyn Crowe |
| 2024-09-19 |
insert otherexecutives Dawn Stites |
| 2024-09-19 |
insert otherexecutives Garland Alvey |
| 2024-09-19 |
insert otherexecutives Kelly Lee |
| 2024-09-19 |
delete email jc..@nnpdf.org |
| 2024-09-19 |
delete index_pages_linkeddomain nnpdfconf.org |
| 2024-09-19 |
delete person Chrystelle Bougault |
| 2024-09-19 |
delete person Joslyn Crowe |
| 2024-09-19 |
insert person Dawn Stites |
| 2024-09-19 |
insert person Garland Alvey |
| 2024-09-19 |
insert person Joshua Baker |
| 2024-09-19 |
insert person Kelly Lee |
| 2024-09-19 |
insert person William "Sherman" Garver |
| 2023-06-28 |
delete person Nicole Farhat |
| 2023-06-28 |
insert index_pages_linkeddomain nnpdfconf.org |
| 2022-10-23 |
insert otherexecutives Gail Koujaian |
| 2022-10-23 |
insert otherexecutives Taylor Sabky |
| 2022-10-23 |
insert otherexecutives Travis Obermeyer |
| 2022-10-23 |
delete index_pages_linkeddomain nnpdfconf.org |
| 2022-10-23 |
insert person Gail Koujaian |
| 2022-10-23 |
insert person Taylor Sabky |
| 2022-10-23 |
insert person Travis Obermeyer |
| 2022-10-23 |
update person_description Justin Hopkin => Justin Hopkin |
| 2022-10-23 |
update person_description Michael Smith => Michael Smith |
| 2022-07-18 |
delete source_ip 45.79.167.249 |
| 2022-07-18 |
insert source_ip 151.101.130.159 |
| 2022-04-16 |
insert about_pages_linkeddomain facebook.com |
| 2022-04-16 |
insert about_pages_linkeddomain instagram.com |
| 2022-04-16 |
insert about_pages_linkeddomain linkedin.com |
| 2022-04-16 |
insert about_pages_linkeddomain twitter.com |
| 2022-04-16 |
insert contact_pages_linkeddomain facebook.com |
| 2022-04-16 |
insert contact_pages_linkeddomain instagram.com |
| 2022-04-16 |
insert contact_pages_linkeddomain linkedin.com |
| 2022-04-16 |
insert contact_pages_linkeddomain twitter.com |
| 2022-04-16 |
insert index_pages_linkeddomain facebook.com |
| 2022-04-16 |
insert index_pages_linkeddomain instagram.com |
| 2022-04-16 |
insert index_pages_linkeddomain linkedin.com |
| 2022-04-16 |
insert index_pages_linkeddomain nnpdfconf.org |
| 2022-04-16 |
insert index_pages_linkeddomain twitter.com |
| 2022-04-16 |
insert management_pages_linkeddomain facebook.com |
| 2022-04-16 |
insert management_pages_linkeddomain instagram.com |
| 2022-04-16 |
insert management_pages_linkeddomain linkedin.com |
| 2022-04-16 |
insert management_pages_linkeddomain twitter.com |
| 2022-04-16 |
insert service_pages_linkeddomain facebook.com |
| 2022-04-16 |
insert service_pages_linkeddomain instagram.com |
| 2022-04-16 |
insert service_pages_linkeddomain linkedin.com |
| 2022-04-16 |
insert service_pages_linkeddomain twitter.com |
| 2022-04-16 |
insert terms_pages_linkeddomain facebook.com |
| 2022-04-16 |
insert terms_pages_linkeddomain instagram.com |
| 2022-04-16 |
insert terms_pages_linkeddomain linkedin.com |
| 2022-04-16 |
insert terms_pages_linkeddomain twitter.com |
| 2022-04-16 |
update person_description Jill Beirl => Jill Beirl |
| 2022-03-16 |
delete source_ip 192.124.249.14 |
| 2022-03-16 |
insert index_pages_linkeddomain neoncrm.com |
| 2022-03-16 |
insert index_pages_linkeddomain rampantimaginations.com |
| 2022-03-16 |
insert index_pages_linkeddomain z2systems.com |
| 2022-03-16 |
insert source_ip 45.79.167.249 |
| 2022-03-16 |
update website_status FlippedRobots => OK |
| 2022-02-17 |
update website_status OK => FlippedRobots |
| 2021-07-05 |
insert otherexecutives Cara Gilmore |
| 2021-07-05 |
insert otherexecutives Kari Lato |
| 2021-07-05 |
insert otherexecutives Mary Frances Harmon |
| 2021-07-05 |
delete person Missy Ward |
| 2021-07-05 |
delete source_ip 107.180.41.159 |
| 2021-07-05 |
insert person Cara Gilmore |
| 2021-07-05 |
insert person Kari Lato |
| 2021-07-05 |
insert person Mary Frances Harmon |
| 2021-07-05 |
insert source_ip 192.124.249.14 |
| 2021-07-05 |
update person_title Paul Merrigan: Director - at - Large; Director - at - Large / Newton Centre => Director - at - Large; Director - at - Large / Industry Executive |
| 2020-10-16 |
delete otherexecutives Becky McGuire |
| 2020-10-16 |
update person_title Becky McGuire: Director - at - Large => Vice Chair |
| 2020-06-27 |
insert otherexecutives Anthony Leoni |
| 2020-06-27 |
insert otherexecutives Kara Ayik |
| 2020-06-27 |
insert otherexecutives Paul Merrigan |
| 2020-06-27 |
insert treasurer Mike Smith |
| 2020-06-27 |
delete email li..@umich.edu |
| 2020-06-27 |
delete email st..@mendellawfirm.com |
| 2020-06-27 |
insert person Anthony Leoni |
| 2020-06-27 |
insert person Kara Ayik |
| 2020-06-27 |
insert person Mike Smith |
| 2020-06-27 |
insert person Paul Merrigan |
| 2020-03-28 |
delete phone 920-563-0930 |
| 2019-09-20 |
delete otherexecutives Andrea Ballabio |
| 2019-09-20 |
delete personal_emails ed..@mssm.edu |
| 2019-09-20 |
delete personal_emails je..@unige.ch |
| 2019-09-20 |
delete personal_emails je..@ualberta.ca |
| 2019-09-20 |
delete personal_emails ma..@inserm.fr |
| 2019-09-20 |
delete personal_emails pa..@mayo.edu |
| 2019-09-20 |
delete personal_emails st..@einstein.yu.edu |
| 2019-09-20 |
delete personal_emails yi..@mssm.edu |
| 2019-09-20 |
delete email ba..@tigem.it |
| 2019-09-20 |
delete email dl..@cbm.uam.es |
| 2019-09-20 |
delete email do..@wustl.edu |
| 2019-09-20 |
delete email ed..@mssm.edu |
| 2019-09-20 |
delete email fd..@mail.nih.gov |
| 2019-09-20 |
delete email fr..@pharm.ox.ac.uk |
| 2019-09-20 |
delete email he..@med.uni-heidelberg.de |
| 2019-09-20 |
delete email je..@unige.ch |
| 2019-09-20 |
delete email je..@ualberta.ca |
| 2019-09-20 |
delete email la..@tufts.edu |
| 2019-09-20 |
delete email ma..@inserm.fr |
| 2019-09-20 |
delete email pa..@mayo.edu |
| 2019-09-20 |
delete email pe..@xtra.co.nz |
| 2019-09-20 |
delete email ro..@mssm.edu |
| 2019-09-20 |
delete email sl..@columbia.edu |
| 2019-09-20 |
delete email st..@einstein.yu.edu |
| 2019-09-20 |
delete email vi..@vet.upenn.edu |
| 2019-09-20 |
delete email yi..@mssm.edu |
| 2019-09-20 |
delete management_pages_linkeddomain cardiology.wustl.edu |
| 2019-09-20 |
delete management_pages_linkeddomain cumc.columbia.edu |
| 2019-09-20 |
delete management_pages_linkeddomain einstein.yu.edu |
| 2019-09-20 |
delete management_pages_linkeddomain inserm.fr |
| 2019-09-20 |
delete management_pages_linkeddomain mayoclinic.org |
| 2019-09-20 |
delete management_pages_linkeddomain med.umich.edu |
| 2019-09-20 |
delete management_pages_linkeddomain mountsinai.org |
| 2019-09-20 |
delete management_pages_linkeddomain nih.gov |
| 2019-09-20 |
delete management_pages_linkeddomain pharm.ox.ac.uk |
| 2019-09-20 |
delete management_pages_linkeddomain sackler.tufts.edu |
| 2019-09-20 |
delete management_pages_linkeddomain tigem.it |
| 2019-09-20 |
delete management_pages_linkeddomain ualberta.ca |
| 2019-09-20 |
delete management_pages_linkeddomain uam.es |
| 2019-09-20 |
delete management_pages_linkeddomain uni-heidelberg.de |
| 2019-09-20 |
delete management_pages_linkeddomain unige.ch |
| 2019-09-20 |
delete management_pages_linkeddomain vet.upenn.edu |
| 2019-09-20 |
delete management_pages_linkeddomain wikipedia.org |
| 2019-09-20 |
delete person Andrea Ballabio |
| 2019-09-20 |
delete person Charles H. Vite |
| 2019-09-20 |
delete person Daniel S. Ory |
| 2019-09-20 |
delete person Dr. Pentchev Honored |
| 2019-09-20 |
delete person Fran Platt |
| 2019-09-20 |
delete person Gerald D. Abrams |
| 2019-09-20 |
delete person Heiko Runz |
| 2019-09-20 |
delete person Jean E. Vance |
| 2019-09-20 |
delete person Jean Gruenberg |
| 2019-09-20 |
delete person Laura Liscum |
| 2019-09-20 |
delete person Marie Vanier |
| 2019-09-20 |
delete person Peter Pentchev |
| 2019-09-20 |
delete person Robert J. Desnick |
| 2019-09-20 |
delete person Steven U. Walkley |
| 2019-09-20 |
delete person Yiannis A. Ioannou |
| 2019-09-20 |
insert person Caroline Hastings |
| 2019-09-20 |
insert person Melissa Wasserstein |
| 2019-09-20 |
insert person UC San Diego |
| 2019-09-20 |
update person_title Chrystelle Bougault: Director - at - Large / La Jolla, CA; Director - at - Large => Research / Clinical Board Member / Project Manager; Director - at - Large; Director - at - Large / La Jolla, CA; Member of the SAB |
| 2019-07-17 |
delete otherexecutives Anne OConnor-Smith |
| 2019-07-17 |
insert otherexecutives Chrystelle Bougault |
| 2019-07-17 |
insert otherexecutives Liz Heinze |
| 2019-07-17 |
insert otherexecutives Meghann Ferguson |
| 2019-07-17 |
delete email ao..@gmail.com |
| 2019-07-17 |
delete email fl..@gmail.com |
| 2019-07-17 |
delete email lc..@nnpdf.org |
| 2019-07-17 |
delete email mi..@bellsouth.net |
| 2019-07-17 |
delete email pa..@gmail.com |
| 2019-07-17 |
insert person Chrystelle Bougault |
| 2019-07-17 |
insert person Liz Heinze |
| 2019-07-17 |
insert person Meghann Ferguson |
| 2019-07-17 |
update person_description Lisa Chavez => Lisa Chavez |
| 2019-07-17 |
update person_title Anne OConnor-Smith: Director - at - Large => Interim Treasurer |
| 2019-03-26 |
delete chairman Lisa Chavez |
| 2019-03-26 |
insert otherexecutives Joslyn Crowe |
| 2019-03-26 |
delete email ho..@wyoming.com |
| 2019-03-26 |
delete email jf..@earthlink.net |
| 2019-03-26 |
delete person Jim Green |
| 2019-03-26 |
insert email fa..@nnpdf.org |
| 2019-03-26 |
insert email fl..@gmail.com |
| 2019-03-26 |
insert email jc..@nnpdf.org |
| 2019-03-26 |
insert email jh..@nnpdf.org |
| 2019-03-26 |
insert management_pages_linkeddomain wikipedia.org |
| 2019-03-26 |
insert person Joslyn Crowe |
| 2019-03-26 |
insert person Laurie Turner |
| 2019-03-26 |
update person_title Chris Klauer: Family Support & Marketing Coordinator => Office Manager |
| 2019-03-26 |
update person_title Jill Beirl: Data Entry Specialist; Administrative Assistant => Communications & Marketing Coordinator |
| 2019-03-26 |
update person_title Jill Flinton: Finance Chair / National Niemann - Pick Disease Foundation; Treasurer => Treasurer |
| 2019-03-26 |
update person_title Lisa Chavez: Chairman; Nominations Chair / Board Co Vice - Chair; Board Chair / National Niemann - Pick Disease Foundation; Chairman of the Board => Vice Chair |
| 2019-03-26 |
update person_title Tammy Vaughan: Secretary => null |
| 2018-05-13 |
delete otherexecutives Missy Ward |
| 2018-05-13 |
delete personal_emails w...@comcast.net |
| 2018-05-13 |
delete email el..@aol.com |
| 2018-05-13 |
delete email ma..@gmail.com |
| 2018-05-13 |
delete email sl..@msn.com |
| 2018-05-13 |
delete email ta..@butterball.ca |
| 2018-05-13 |
delete email w...@comcast.net |
| 2018-05-13 |
update person_description Wayne Palmiter => Wayne Palmiter |
| 2018-05-13 |
update person_title Missy Ward: Director - at - Large => Secretary |
| 2017-07-29 |
update person_title Edward H. Schuchman: Vice Chairman for Research; Member of the Scientific Advisory Board; Research Fellowship ( ASMD NPD Types a & B ) => Vice Chairman for Research; Member of the Scientific Advisory Board |
| 2017-06-22 |
update person_description Elissa Miller-Visoky => Elissa Miller-Visoky |
| 2017-05-07 |
delete otherexecutives Justin Hopkin |
| 2017-05-07 |
delete address P.O. Box 49
401 Madison Avenue, Suite B
Fort Atkinson, WI 53538-0049 |
| 2017-05-07 |
update person_title Justin Hopkin: Director - at - Large => Vice Chair of the Board |
| 2017-03-04 |
delete otherexecutives Jill Flinton |
| 2017-03-04 |
delete treasurer Anne OConnor-Smith |
| 2017-03-04 |
insert otherexecutives Anne OConnor-Smith |
| 2017-03-04 |
delete email ao..@gmail.com |
| 2017-03-04 |
delete email ja..@hughes.net |
| 2017-03-04 |
delete fax 1-920-563-0931 |
| 2017-03-04 |
delete phone 1-877-287-3672 |
| 2017-03-04 |
delete phone 1-920-563-0930 |
| 2017-03-04 |
insert email ao..@gmail.com |
| 2017-03-04 |
insert email lc..@nnpdf.org |
| 2017-03-04 |
update person_title Anne OConnor-Smith: Treasurer => Director - at - Large |
| 2017-03-04 |
update person_title Jill Flinton: Finance Chair / National Niemann - Pick Disease Foundation; Director - at - Large; Treasurer => Finance Chair / National Niemann - Pick Disease Foundation; Treasurer |
| 2016-12-29 |
delete office_emails nh..@nnpdf.org |
| 2016-12-29 |
delete otherexecutives Nadine M. Hill |
| 2016-12-29 |
delete email nh..@nnpdf.org |
| 2016-12-29 |
delete person Nadine M. Hill |
| 2016-11-15 |
update website_status EmptyPage => OK |
| 2016-11-15 |
delete source_ip 65.254.231.150 |
| 2016-11-15 |
insert source_ip 107.180.41.159 |
| 2015-04-02 |
update website_status OK => EmptyPage |
| 2015-02-26 |
delete about_pages_linkeddomain canadagoosenorgejakker.com |
| 2015-02-26 |
delete about_pages_linkeddomain canadagoosenorgeparka.com |
| 2015-02-26 |
delete about_pages_linkeddomain parkacanadagoosenorge.net |
| 2015-01-20 |
delete address Mother of Graham (NPC)
Chepachet, RI 02814 |
| 2015-01-20 |
insert address Mother of Graham (NPC)
Foster, RI 02814 |
| 2014-12-14 |
delete about_pages_linkeddomain google.com |
| 2014-12-14 |
delete index_pages_linkeddomain google.com |
| 2014-12-14 |
delete management_pages_linkeddomain google.com |
| 2014-12-14 |
delete terms_pages_linkeddomain google.com |
| 2014-10-11 |
delete personal_emails de..@yahoo.com |
| 2014-10-11 |
delete address 2011 Conference - Norfolk, Virginia |
| 2014-10-11 |
delete email de..@yahoo.com |
| 2014-10-11 |
insert email lh..@yahoo.com |
| 2014-08-31 |
delete email el..@yahoo.com |
| 2014-08-31 |
delete email rm..@ric.edu |
| 2014-08-31 |
insert email el..@aol.com |
| 2014-08-31 |
insert index_pages_linkeddomain ophthalmixonline.com |
| 2014-07-23 |
insert about_pages_linkeddomain networkforgood.org |
| 2014-07-23 |
insert management_pages_linkeddomain networkforgood.org |
| 2014-07-23 |
insert terms_pages_linkeddomain networkforgood.org |
| 2014-07-23 |
update person_title Becky McGuire: Interim Committee Chair; Chairman of the Executive Committee; Chairman of the Development Committee; Director - at - Large; Chairman of the Nominations Committee; Audio / Visual / Media Specialist => Chairman of the Executive Committee; Chairman of the Development Committee; Director - at - Large; Member of the Nominations Committee; Audio / Visual / Media Specialist |
| 2014-04-21 |
delete otherexecutives Cynthia MacLean |
| 2014-04-21 |
insert otherexecutives Elissa Miller |
| 2014-04-21 |
insert otherexecutives Jim Thompson |
| 2014-04-21 |
insert otherexecutives Karen Quandt |
| 2014-04-21 |
insert otherexecutives Wayne Palmiter |
| 2014-04-21 |
insert personal_emails w...@comcast.ne |
| 2014-04-21 |
insert personal_emails w...@comcast.net |
| 2014-04-21 |
delete email ba..@cox.net |
| 2014-04-21 |
delete email co..@yahoo.com |
| 2014-04-21 |
delete email cy..@comcast.net |
| 2014-04-21 |
delete email jo..@taftrealestate.com |
| 2014-04-21 |
delete email ka..@hotmail.com |
| 2014-04-21 |
delete index_pages_linkeddomain mayoclinic.org |
| 2014-04-21 |
delete person Cynthia MacLean |
| 2014-04-21 |
insert email el..@yahoo.com |
| 2014-04-21 |
insert email jt..@gmail.com |
| 2014-04-21 |
insert email w...@comcast.ne |
| 2014-04-21 |
insert email w...@comcast.net |
| 2014-04-21 |
insert person Elissa Miller |
| 2014-04-21 |
insert person Gerald D. Abrams |
| 2014-04-21 |
insert person Jim Thompson |
| 2014-04-21 |
insert person Wayne Palmiter |
| 2014-04-21 |
update person_title Becky McGuire: Member of the Executive Committee; Director - at - Large; Member of the Development Committee; Member of the Family Conference Planning Team; Member of the Nominations Committee; Audio / Visual / Media Specialist => Interim Committee Chair; Chairman of the Executive Committee; Chairman of the Development Committee; Director - at - Large; Chairman of the Nominations Committee; Audio / Visual / Media Specialist |
| 2014-04-21 |
update person_title Karen Quandt: Chairman of the Executive Committee; Member of the Family Conference Planning Team; Board Co - Chair ( Ex - Officio Member ); Vice - Chair of the Research Committee; Chairman of the Research Committee; Co - Chair of the Executive Committee; Chairman of the Development Committee; Chairman of the Nominations Committee; Chairman of the Board; Co - Chair of the Board => Member of the Research Committee; Chairman of the Board |
| 2014-04-21 |
update person_title Lisa Chavez: Chairman of the Executive Committee; Chairman of the Development Committee; Member of the Family Conference Planning Team; Vice - Chair of the Board; Member of the Nominations Committee; Family Representative; Vice - Chair of the Executive Committee => Board Vice Chair ( Ex - Officio Member ); NPC Family Representative; Chairman of the Executive Committee; Vice - Chair of the Board; Member of the Nominations Committee; Vice - Chair of the Executive Committee |
| 2014-04-21 |
update person_title Sandra Cowie: Member of the Executive Committee; Chairman of the Research Committee; Director - at - Large; Member of the Family Conference Planning Team => Member of the Executive Committee; Chairman of the Research Committee; Director - at - Large; ASMD Family Representative & Family Conference Host 2010 ( Toronto, Canada ) |
| 2014-04-21 |
update person_title Tammy Vaughan: Member of the Executive Committee; Secretary of the Executive Committee; Member of the Research Committee; Member of the Family Conference Planning Team; Member of the Nominations Committee => Member of the Research Committee; Canadian Family Representative; Board Consultant |
| 2013-11-01 |
insert about_pages_linkeddomain sackler.tufts.edu |