REGISTRY

The Myotubular and Centronuclear Myopathy Patient Registry (‘MTM and CNM Registry') is an international database specific to these conditions, operated by Newcastle University in the UK as part of the global TREAT-NMD Neuromuscular Network. The registry was developed in partnership with the MTM and CNM communities and is jointly funded by the Myotubular Trust, Muscular Dystrophy UK, and Astellas Pharma Inc. The registry is governed by an independent expert Steering Committee and data is managed according to GDPR requirements... Improve understanding of the prevalence and natural history of these conditions.

Primary location: Newcastle Upon Tyne United Kingdom