FAMILY CONNECTION OF SOUTH CAROLINA - Key Persons
Job Titles:
- Community Impact Director / American Heart Association
Ana Sofia has a smile that lights up a room. She's patient, forgiving and kind. She is also a total water baby-it is absolutely her favorite thing to do! Whether it's a bathtub, splash pad, pool, ocean, or just a puddle, she loves it all.
Ana Sofia has a rare genetic mutation in the CASK gene. This gene mutation caused microcephaly with cerebellar and pontine hypoplasia which means a small head with particularly small cerebellum. This affects nearly every aspect of her life including feeding, communicating, moving, and socializing.
This past year, Ana Sofia started walking and has been able to transition to eating all of her food by mouth instead of using a feeding tube. Seeing her pure joy at some of life's simplest things-a good story, a warm bath, a good meal-reminds her family to appreciate the little things. She makes them feel proud every day.
Job Titles:
- Member of the Board of Directors
Job Titles:
- Chief Science Officer
- Co - Founder
- Secretary of the Board
Job Titles:
- Director of the White - Riley - Peterson Afterschool Policy Fellowship / Furman University
Job Titles:
- President of the Board
- Psychologist
Job Titles:
- Assistant Principal / Irmo Middle School
Job Titles:
- Professor of Special Education / University of South Carolina
Job Titles:
- Director, Alliance for a Healthier SC / South Carolina Hospital Association