PWSA (USA - Key Persons
Job Titles:
- Development Database Coordinator
- the Development Database Coordinator
Andrea Hughes joined PWSA | USA in September 2022 as the Development Database Coordinator. In this role, she works closely with all departments to maintain the accuracy of the data while assisting with supporting all fundraising activities. She brings over 20 years of database and fundraising experience in the nonprofit and educational sector to her role with PWSA. Andrea is also a notary public and lease signing agent as well as a certified Zumba instructor. Andrea resides in New Jersey with her husband Sean. In her spare time, she loves to travel, read, dote on her children, and play with her two dogs.
Angela has been married for 20 years and lives with her family, including 4 children, in Austin, Texas. Her youngest, Joseph, was diagnosed with PWS when he was 2 months old and is currently in 4th grade. Angela has a love for gathering people around a cause, especially helping raise awareness for PWS. Over the years, she has helped multiple non-profit organizations with fundraising primarily through special events. It's a natural fit for her since she has been in the hospitality and event planning industry for over 20 years. Angela enjoys travelling and spending time with her family often watching her girl at dance and her boys playing sports.
Job Titles:
- Vice - Chair / Kansas University Medical Center / Kansas City, KS
Dr. Scheimann received her doctorate of medicine at the University of Cincinnati School of Medicine and completed her pediatric residency and pediatric gastroenterology and nutrition fellowship at Baylor College of Medicine/Texas Children's Hospital. She was full time faculty within the Division of Pediatric Gastroenterology and Nutrition at Baylor College of Medicine until 2000 when she moved to join the full-time faculty within the Department of Pediatrics/Division of Pediatric Gastroenterology at Johns Hopkins School of Medicine but remained adjunct faculty at Baylor College of Medicine directing the Prader-Willi Syndrome Clinic at Texas Children's Hospital. Dr. Scheimann completed a Master's in Health Sciences Management at Johns Hopkins School of Business in 2005. Dr. Scheimann's focus of research interest has been in nutrition and obesity with special areas of interest in Prader-Willi syndrome and nonalcoholic fatty liver disease. She has authored or co-authored to date approximately 89 peer-reviewed publications in addition to book chapters. She has been honored to serve on the advisory boards for IPWSO and PWSA | -USA, volunteered for several years on the medical crisis team for PWSA | USA and presented at regional, national and international Prader-Willi Syndrome Conferences.
Job Titles:
- Professor of Pediatrics / Assistant Dean of Graduate Medical Education
Job Titles:
- Board Chair, Ken Smith, Vice - Chair
Job Titles:
- President of PWSA ( USA )
Job Titles:
- Director of Marketing & Communications
Carrie joined PWSA | USA in May 2021 as the Director of Marketing & Communications. In this role, she coordinates our social media efforts, creates marketing and communication strategies, and works closely with the PWSA | USA network to share stories that offer help and hope. Carrie graduated from the University of Wisconsin-Whitewater with a B.A. in Broadcast Journalism and a Marketing minor. For three years, she worked as a multimedia journalist and weekend anchor for news stations in Topeka, KS and Madison, WI. Carrie left the news industry to take on a role with a behavioral healthcare nonprofit in Cleveland, OH, where she worked as their Marketing and Communications Coordinator for four years. Carrie lives in Cleveland, Ohio with her husband Steve and their Cavapoo, Henry. In Carrie's free time, she enjoys picking up her camera to capture anything and everything, and spends a lot of her weekends hiking through the Cuyahoga Valley National Park.
Clint Hurdle has spent 45 seasons in professional baseball, where he has won a total of 1269 games as a manager between the Colorado Rockies and Pittsburgh Pirates. The 1269 wins rank 38th all-time in managerial history. Under his guidance with the Rockies, he led the team to its first-ever World Series appearance in 2007 as the club captured its first National League championship in franchise history. On November 15, 2010, he was appointed as the 39th manager in Pittsburgh Pirates history, where he helped "re-bond" and "reconnect" the city of Pittsburgh with a team that went on to make three straight postseason appearances from 2013-15. During his tenure with the Pirates, he was named the 2013 National League Manager of the Year, while winning a total of 735 games, which ranks fourth on the club's all-time managerial wins list. Hurdle was selected ninth overall in the 1975 June draft by the Kansas City Royals. Just two years later at the age of 20, he made his Major League debut with the Royals on September 18, 1977. He has demonstrated his passion to "make a difference" in the communities he and his family have been a part of in Denver and Pittsburgh through his time and charity in supporting many causes, including as the national spokesperson for Prader-Willi Syndrome Association USA. Hurdle makes his home in Florida with his wife Karla, and is the proud father of his three children Ashley, Madison and Christian.
Job Titles:
- Exercise Physiology Scientist / Professor in Kinesiology
Job Titles:
- Vascular and Interventional Radiologist / Indiana University School of Medicine / Indianapolis, in
Job Titles:
- Speech - Language Pathologist
Denise is a speech-language pathologist (SLP) from Lake Elmo, MN. She graduated from the University of Virginia with a Master of Education in Communication Disorders. She currently works in a K-8 school in St. Paul. Denise has been working as a SLP for over 20 years and has worked in a variety of settings and with different ages, from early childhood to geriatric. She is a member of the American Speech and Hearing Association. Denise lives with her husband, Jeff, and their three daughters, Maddie, Maya, and Mallory. Maya was diagnosed with Prader-Willi syndrome at the age of one month. In her free time, Denise enjoys singing, traveling, and spending time with her family.
Job Titles:
- Director of Community Engagement
- Real Estate Broker With ONE Sotheby 's International Realty and Is Lifetime Resident of Miami
Dorothea Lantz is a licensed Real Estate Broker with ONE Sotheby's International Realty and is lifetime resident of Miami, Florida. After the birth of her son Hunter in 2017, Dorothea and her husband became involved in PWSA | USA through volunteer and fundraising events. She began working for PWSA | USA as the Community Engagement Specialist in May 2021 and has created an advocacy and awareness program to help educate and activate the PWS community.
In addition to real estate, Dorothea has an extensive background in public service, government administration and is a contributing member of the South Florida and PWS community. She has been a Parent Mentor with PWSA | USA since 2019 and resides on the Advocacy Committee. In addition, Dorothea is an appointed member of the City of South Miami Environmental Review and Preservation Board and a Mentor with the ACE Foundation Women's Leadership Institute. She is a member/specialist with the Institute for Luxury Home Marketing (CLHMS), holds a Transnational Referral Certification under the supervision of the International Real Estate Associates (ICREA) and is a Certified Residential Specialist (CRS), which is the highest credential awarded to residential sales agents, managers, and brokers.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children's Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor's and Master's degree in Education with a focus on elementary education, special education, and language arts.
She obtained her PhD from Capella University in Education focusing her research on Prader-Willi Syndrome. Dr. McTighe is also a graduate of the William & Mary Law School's Institute for Special Education Advocacy. Dr. McTighe is currently the chair of the Special Education Advisory Board for the Prader-Willi Syndrome Association-(USA). Amy is the Chair of PWSA (USA)'s Special Education Advisory Board.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
In addition to Evan's work with parents, he helped create PWSA (USA)'s Wyatt Special Education Advocacy Training (WSEAT) in 2013, the PWSA (USA) Special Education Advisory Board (SEAB) and created PWSA (USA)'s e-letter "School Times". Evan's special education advocacy training includes graduating from the William and Mary College of Law's Special Education Advocacy Institute and regularly attending the annual Special Education Law Symposium at Lehigh University. Evan has an M.A. in Mental Health Counseling.
Job Titles:
- Psychiatrist, Pittsburgh Partnership / Pittsburgh, PA
Jeff Covington lives in Albany, New York with his wife Lisa and their son, Grant. His adult daughter Alaina lives in Boston. Jeff holds a Master's Degree in Public Health and a Bachelor of Arts Degree in American History from the University at Albany. Working as a professional provider is something Jeff has done since 1994; beginning as a camp counselor at OPWDD's Camp Wilton outside Saratoga Springs, NY. From 2004 to 2014 Jeff served as the Director of Residential Services for Catholic Charities Disabilities Services in Albany. CCDS specialized in residential services to individuals with Prader-Willi Syndrome. During that time Jeff served as the Residential Supports Advisor for the Prader-Willi Alliance of New York (PWANY, Inc.) and as a member and eventual co-chair of the PWSA | USA Professional Provider Advisory Board. In 2008 Jeff was part of a contingent of American professional PWS providers who traveled to Herne, Germany to lead a delegation of international providers in creating a best practices manual for the support of individuals with PWS. Additionally, Jeff has been a frequent presenter at both state and national conferences for PWANY, Inc. and PWSA | USA. Currently, Jeff works as the Director of State Implementation for Therap Services. Therap Services is an Electronic Health Record specializing in meeting the needs of agencies serving people with developmental disabilities and is used in all fifty states.
Job Titles:
- Special Education Specialist
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Over the years, as a special-needs parent navigating the Special Education system for Sophie, Jennifer became interested in learning as much as possible about that process. She began by attending PWSA (USA)'s first Wyatt Special Education Advocacy Training in March of 2013, and went on to complete a rigorous 9-month Special Education Advocacy Training course with the Council of Parent Advocates and Attorneys in May of 2015. This included successfully completing an advocacy internship with PWSA (USA). Jennifer is referred school cases by PWSA (USA)'s Family Support Counselors, and then works closely with parents and schools to review education records, assess the child's situation at school, provide further information about how the syndrome affects the school experience, and, as needed, create improved IEPs and behavioral plans. Jennifer was excited to take on this role of helping parents in the PWS community to work collaboratively with school professionals and parents to create positive, effective learning environments for children with PWS across the country. Jennifer is a graduate of the WSEAT program.
Jennifer joined the staff of PWSA | USA in January 2022 as the Director of Accounting. She lives in St. Joseph, Missouri and has BS degrees in Accounting and Business Administration from Lincoln University and is a CPA licensed in the state of Missouri. Early in her career, Jennifer worked briefly for a large public accounting firm before taking a position as the Manager of Accounting for N.W. Electric Power Cooperative for 14 years. In early 2020 she stepped away to be home full time with her growing family. She is married and has 6 children including 1 year old twins, one a daughter who was diagnosed with PWS in 2020 at 3 weeks of age. During and since that time, PWSA | USA has been a significant resource and beacon of hope for the Hill family in learning how to care for a child with PWS. Jennifer believes in the mission of PWSA | USA and is excited and honored to bring her years of accounting experience to the organization to help them accomplish it.
Job Titles:
- Endocrinologist / University of Florida
Job Titles:
- Board Chair, Tammie Penta, Vice - Chair
Job Titles:
- Board Chair, Ken Smith, Vice - Chair
Job Titles:
- Senior Vice President of the America 's Sales Organization for Alteryx
John and his wife Lori who live south of Boston, are passioniate about helping raise awareness and education while providing support for families that are impacted by PWS. Their adult son Hunter (23) was diagnosed with PWS shortly after birth and is currently living at home thriving with his 2 siblings Hayden (20) and Abbey (18) who are both in college working on their biology degrees. Over the last twelve plus years the Lens family has sponsored a friends and family Hunter Lens PWSA Charity Golf tournament that over the years has raised hundreds of thousands of dollars to help families in need. From a professional side, John Lens is a Senior Vice President of the America's sales organization for Alteryx which is a data analytics software company headquartered in Irvine CA. John previously served in numerous leadership positions including Vice President of the America's Software Define Datacenter Strategy at VMware for 17 years leading large enterprise and global sales teams that exceeded $3B in yearly revenue growth. John received a business degree from Fitchburg State University and attended the Northwestern Kellogg School Executive Program.
Kathryn received her training from the Institute for Integrative Nutrition, where she studied a variety of dietary theories and practical lifestyle coaching methods. With her knowledge, she helps to co-create completely personalized actions, based on client's goals to move them toward their ideal vision of health within their unique body, lifestyle, preferences, and resources. Kathryn has a Bachelor's degree in Exercise Science and a Masters in Social Work to give her clients a well-rounded way of thinking during her client's wellness journey. Kathryn is married to her supportive husband Armando who has helped to provide strength and balance when their son Ronan was diagnosed with Prader Willi Syndrome over 8 years ago. Ronan inspired Kathryn to discover that finding balance in her own life is most important and taking care of herself takes priority. Life can be chaotic and finding balance can seem out of reach but being able to find a balance in her life helped her discover the love she not only had for herself but the journey she was embarking on.
Job Titles:
- Chairman of the Board
- Executive Director
Ken Smith joined Carol Hearn as co-chairs of PWSA (USA)
Job Titles:
- CSW Alterman Family Support Counselor
Kim has been a Family Support Counselor with PWSA | USA since 2019. Kim holds a Master's in Human Services with a specialization in Multidisciplinary Human Services and a Bachelor's Degree in Psychology and Sociology. Kim is also a Certified Social Worker in Wisconsin. She had worked in a residential care setting since 1990, working with a wide variety of client populations, including children and adults diagnosed with Prader-Willi syndrome and with intensive treatment needs. Prior to joining PWSA | USA as a Family Support Counselor, Kim held positions as a Direct Care Staff, Behavior Specialist, Clinical Coordinator, and a Behavior Services Coordinator. Kim has also been involved in the Youth and Adult Program (YAP), at the National PWSA conference since 2011. In 2015, she was tasked with organizing YAP. In 2020 Kim became the Director of the YAP, YIP, and Siblings Programs for the National PWSA | USA convention. Kim loves working with and supporting individuals with PWS and their families. In her free time she enjoys spending time with her husband and daughter, horseback riding, and gardening.
Kristen joined PWSA | USA in May 2015 as the Accounting Clerk, while finishing the Accounting Operations program at Suncoast Technical College the same year. In this role, she works closely with all department teams to keep our income and expenses on track. Prior to joining PWSA | USA, Kristen spent over 20 years in retail, with a focus on merchandising and management. Kristen and her husband live in Sarasota with their son where they enjoy nature adventures and spending quality time together.
Job Titles:
- Parent Support Coordinator
- President of the PWSA Minnesota
Kristi Rickenbach and her husband John ran a non-profit organization for 12 years. Kristi and John have been married for 33 years and have five amazing children and six beautiful grandbabies. Their youngest child, Justice Faith (18), was diagnosed with PWS (UPD) when she was 1 month old. Justice loves helping other kids that are also dealing with PWS. Three of Kristi's passions in life are her faith, family, and helping families and children that are affected by Prader-Willi syndrome.
Kristi is the President of the PWSA Minnesota chapter, is a past board member for PWSA | USA. She has held committee positions with PWSA | USA and is currently a Family Support Coordinator for PWSA | USA.
Lisa is the PWSA Arizona Chapter Secretary. She has a Degree in Child Development, emphasizing in Special Needs. Her passions include nutrition analysis and fitness. Although predominantly a stay-at-home mom, Lisa helps with her family business, Zag Fundraising. She lives in Arizona with her husband Brian, and their two daughters. Makenna (11) who has PWS; and Madison (10).
Job Titles:
- Medical / Research Coordinator
Lynn and her family live in Cottage Grove, MN. She is the mother of 5 children, including her youngest son, who has Prader-Willi syndrome. She has been the Nurse and Program Director with AME Community Services, Inc., a residential provider serving adults and children with Prader- Willi syndrome since 2007. She is a board member of IPWSO, their professional providers and caregivers board, and the Minnesota PWS chapter. PWSA | USA has been a significant resource since the birth of her son, and she is honored to help the community through her personal and professional knowledge. In her personal life, Lynn enjoys spending time outdoors with her family, reading, and gardening.
Marguerite Rupnow has been working with children and adults with Prader-Willi syndrome since 1987. In March 2018 she became the National Director of Admissions and Advocacy for Prader-Willi Homes of Oconomowoc. Marguerite has been actively involved in PWSA | USA and IPWSO conferences by conducting numerous presentations to other caregivers. In 2009 she had the distinct privilege to participate in 1st international caregiver's conference in Herne, Germany which was focused on developing the book the "Best Practices in Standard of Care in PWS". Marguerite was the program leader for the National Convention YAP program 2009-2017. Marguerite has over 35 years of leadership experience and has been involved in the development of program, group home, management, and employee training programs. In 2015, she was elected to the Board of Directors of PWSA | USA. She is the Past President of Respite Care Association of Wisconsin and is on the Project Search Steering Committee for the Watertown Regional Medical Center/Watertown High School. Marguerite has a passion for education, advocacy, working with individuals with PWS, their families and to be a part of the wonderful work PWSA | USA does every day.
Matt McCleery and his wife, Buffy, are the proud father of 3 boys, one of whom has Prader-Willi syndrome. Matt was trained as a lawyer but has spent his entire career involved with the financing of ocean-going cargo ships. He is the owner of Marine Money, a publisher and organizer of 19 ship finance conferences from offices in Singapore, Athens, and Connecticut. He is also a director of Blue Sea Capital, which advises on ship financing transactions. He is the author of The Shipping Man, a novel about a hedge fund manager who purchases an old freighter from a Greek shipowner. Together with Buffy, Matt is a founding member of the Latham School Parent Group and serves on the board of directors of Latham Centers. He is also an organizer of the Latham/Mac Pact PWS Conference and was a founding member of the SEPTO of Guilford, CT. Matt is a strong believer in the power of information sharing and networking to improve the lives of people with PWS and their families.
Job Titles:
- Director of Development
- Full - Time Director of Development
Melanie McDonald joined the staff of PWSA | USA in January 2021 as full-time Director of Development. Melanie brings over 20 years of non-profit experience to her role at PWSA | USA and feels honored to put those skills to work for our PWS community.
After over 20 years in various nonprofit leadership roles across New England, Melanie is eager to put her skills in Fundraising to work for PWSA | USA. Melanie has held Director positions at regional and state-wide organizations in the Arts, Economic Development, and in Jewish organizations, most recently as the Director of the Jewish Federation of New Hampshire. Melanie enjoys her role at PWSA | USA where she can focus her passion and enthusiasm for giving back to a community that continues to be so critical to her own family. Melanie believes fervently that participating in fundraisers can help to empower our community when so much about the PWS journey feels beyond our control.
Melanie resides in southern New Hampshire with two amazing children, Henry (age 11), and Josephine (age 4, living with PWS) and their dog Buddha.
Job Titles:
- Chairman of the Board
- Board Chair, Jim Koerber, Vice - Chair
- Board Chair, Paige Rivard, Vice - Chair
Michelle and her husband, Tommy, live in Homestead, Fl. They have 4 sons and one daughter, Leslie, who has Prader-Willi syndrome. Michelle served as President of the PWSA | USA Florida chapter from 2007 - 2015 and currently serves as a board member. She has been a member of the PWSA | USA Board of Directors since 2009, is currently Chair of the National Convention, serves on several PWSA | USA committees, and is a Parent Mentor. Prior to having children, Michelle worked as a police officer for the City of Homestead. She and her husband formed Torbert Produce and Farms in 1988. Michelle is active in her church and has served on numerous community boards including the Red Cross, Homestead Hospital Pineapple Gala, Palmer Trinity School, and others.
Mitch and his wife Francine have a daughter, Ali, who has Prader-Willi syndrome. They have recently been working, successfully, on her transition to a new supportive living environment. Mitch currently serves on several boards for charitable organizations and has been honored for his charitable giving and fundraising efforts. Professionally, Mitch leads Ernst & Young LLP's Global Life Sciences Tax practice. In this capacity, he has worked with many of the firm's largest pharmaceutical, biotechnology and medical device clients. Mitch also currently serves as the Global Coordinating Partner for all service lines on a Fortune 100 biopharmaceutical company. Mitch received a BS in Accounting from Syracuse University and a JD from The State University of New York's University of Buffalo Law School.
Job Titles:
- Endocrinologist and Geneticist / Department of Pediatrics / Winthrop University Hospital / Mineola, NY
Job Titles:
- Assistant Professor / University of Kansas Medical Center / Kansas City, KS
Job Titles:
- Associate Professor / Division of Endocrinology & Diabetes Seattle Children's / Clinical Director, Prader - Willi Syndrome Clinic
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP's Principal magazine and NASP's Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Past president of the Education Law Association and co-chair of the Pennsylvania special education appeals panel from 1990 to 2007, he is the author of the CEC monograph The Legal Meaning of Specific Learning Disability; the more recently published books, A Digest of Supreme Court Decisions Affecting Education and Student Teaching and the Law; and the two-volume reference Section 504, the ADA and the Schools, now in its fourth edition. In 2012, he received Research into Practice Award from the American Educational Research Association (AERA) and the Excellence in Research Award from AERA's Division A (Administration, Organization & Leadership). In 2013, he received the University Council for Educational Administration's Edwin Bridges award for significant contributions to the preparation and development of school leaders. In 2016, he received the Education Law Association's Steven S. Goldberg Award for Distinguished Scholarship in Education Law, and in 2017 he received the Council for Exceptional Children's Special Education Research Award. Note:Perry's website is perryzirkel.com
Job Titles:
- Information & Referral Specialist
Originally from Egypt, Sarah grew up in Kuwait where she studied Arabic and French languages. She moved to the United States in 2010. She is a legal and healthcare interpreter, and was an Executive Admin for the American Muslim Institute at the Trifaith Campus in Nebraska. Sarah is a new mom of a son diagnosed with Prader-Willi syndrome. She likes to spend time with her son listening to music, singing and reading bedtime stories to him.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children's Hospital in Denver supporting families and school districts around the United States with their child's Individual Educational Plan.
Staci Zimmerman has lived in Denver, CO for the past 17 years. She lives with her husband and 5 year old daughter. Staci attended The University of Kansas, with a B.A in sociology and an M.ed in Special Education, with an emphasis in Autism Spectrum Disorder. Staci enjoys teaching fitness classes, and keeping a healthy, active lifestyle in Colorado.
Stacy Ward, a longtime leader in the PWS community, has a background rich in non-profit, behavioral health, education advocacy and held multiple successful leadership roles. With 30 years of experience working with individuals with ID/DD and 20 years working with individuals diagnosed with PWS, Stacy brings a variety of skills to the role of Interim CEO of PWSA | USA. Prior to her appointment as Interim CEO with PWSA | USA, Stacy was the Director Family Support.
As Director of Family Support, she expanded upon existing and developed new educational and support programs for individuals with PWS, their families and caregivers increasing Family Support actions by 106%. Prior to that, Stacy spent over 12 years working for Catholic Charities Disabilities Services in Albany, NY where she focused on overseeing both the residential and clinical departments. Stacy earned a bachelor's degree in psychology and human services from Russell Sage College and her master's degree in applied behavior analysis from Kaplan University. She possesses a special education advocacy certification from the William and Mary College of Law Pele Clinic and is a member of the Council of Parent Attorneys and Advocates (COPAA) and currently resides in Troy, NY.
Tammie is a retired police sergeant and a recognized expert in elder and child abuse investigations. Additionally, she developed training programs to address crisis situations with people with developmental or mental health issues. Specific to this training was how to address the issues with several adult Prader-Willi syndrome homes located in Southern Arizona. During her time on the PWSA | USA board, Tammie has been the committee chair for the Family & Medical Support program and leadership committees. She has also served on the Executive, Chapter, and Advocacy committees. Tammie has sat on the Arizona chapter for Prader-Willi syndrome since 1996 and was certified through the (WSEAT) Wyatt Special Education Advocacy Training in 2013. Tammie and her husband, Phil, have a son, Victor, who was diagnosed with PWS at the age of two. Victor graduated high school in 2015 and is currently living at home. Their son, Nick, completed his degree in health sciences, and their daughter, Raquel, is employed as a certified nursing assistant and respite provider while continuing her education in special education.
Tim earned a B.A. in American History from Brown University in 1978 and a J.D. from Harvard Law School in 1983. He joined the Minneapolis law firm Dorsey & Whitney LLP upon his graduation from law school and spent 36 years there advising primarily medical device, pharmaceutical and software companies in connection with raising capital, buying and selling businesses, and general corporate governance issues. Tim is married to Carol Hearn, who is also an attorney and a past chair of the PWSA | USA Board of Directors. They have two daughters and a son, David, who was diagnosed with Prader-Willi syndrome at the age of 4. In June of 2019 Tim retired from Dorsey & Whitney and shortly thereafter joined the Boards of Directors of PWSA | USA) and the Friends of IPWSO (USA) where he hopes to use his analytical and problem-solving skills in working to address the needs of PWS individuals and their families.