HUNTER'S HOPE

Updated 716 days ago
  • Age: 26 years
  • ID: 16513682/120
PO Box 643 Orchard Park, NY 14127
Hunter's Hope Foundation is a non-profit organization committed to giving hope through education and awareness, research, and family care for Leukodystrophies and Newborn Screening for... For almost two decades, the Hunter's Hope Foundation has been fighting for NBS for Krabbe Disease. Krabbe is a truly horrible and deadly disease. If babies are not screened for the disease at birth through their state's newborn screening program, they will be diagnosed too late for life saving treatment and typically die by the age of two. In their short lives, Krabbe robs these children of the ability to speak, walk, swallow, and virtually all voluntary movement while causing extreme complications and painful suffering.
Also known as: Hunter's Hope Foundation
Primary location: Orchard Park United States
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Interest Score
3
HIT Score
0.00

Chairman

President

Treasurer
Domain
huntershope.org

Actual
www.huntershope.org

IP
141.193.213.10, 141.193.213.11

Status
OK

Category
Other
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