TEAM SANFILIPPO

Updated 24 days ago
  • Age: 16 years
  • ID: 19057755/129
20 Lakewood Avenue Ronkonkoma, NY 11779
Team Sanfilippo is dedicated to provide assistance to families to gain access to clinical trials, treatments and compassionate use. We help coordinate necessary genetic testing required for families to participate in clinical trials or treatments... For symptomatic children, with manifestations of advanced disease, these emerging therapies may offer only limited benefit. Therefore, Team Sanfilippo is seeking research proposals focusing upon advancing the scientific understanding of the neuropathological changes that occur in MPSIII and potential mechanisms for restoring neuroplasticity and neurogenesis once disease progression has occurred. Of specific interest will be proposals that examine synergistic interactions with emerging therapies. With the advancement in combined therapies we will be able to give children the best quality of life... Team Sanfilippo Foundation is a non profit medical research foundation founded in 2008 by parents of children with Sanfilippo Syndrome. Our..
Also known as: Team Sanfilippo Foundation
Primary location: Ronkonkoma United States
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Interest Score
1
HIT Score
0.00
Domain
teamsanfilippo.org

Actual
teamsanfilippo.org

IP
52.248.36.226

Status
OK

Category
Company, Other
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