DOOSE SYNDROME

Doose syndrome is a rare form of early childhood epilepsy with no known cause or cure. We exist to improve the quality of life and provide support for families... At times you may feel overwhelmed by information. Before we go any further, we want you to know that there is a group of parents who are walking the same path as you are right now. Many are further up ahead and we are here to reach back to help. Others are just beginning the journey. The group is there for you to ask questions, to vent and share your grief, and to share moments of joy, of which there will be many. We promise. You will need a network of support for this journey and we are here to help. You can find the group at www.facebook.com/DooseSyndrome... Also, if you encounter terms that are not familiar to you we have developed a "Doose Dictionary" on the site that you can visit here. Let us know if you come across anything you don't understand and we will try and address it on the site. You can submit questions..

Primary location: Marlboro United States