HOPE FOR HYPOTHALAMIC HAMARTOMAS

Hope for Hypothalamic Hamartomas (Hope for HH) is a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas (HH)... Hope for Hypothalamic Hamartomas (HopeForHH.org) provides information, support and community to HH patients, caregivers and healthcare providers. We promote research into early detection, improved treatments, living with HH as a complex medical syndrome, and a cure... Hope for HH provides up-to-date factual information to HH patients and caregivers. Beyond the medical challenges, HH children, teenagers, and adults confront challenges in areas of behavior, education, socialization, employment, and independent living. Helpful information, as well as online support Forums, are available at this site as well.

Also known as: Hope for HH

Primary location: United States