BLINDNESS - Key Persons
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- Assistant Professor, Department of Ophthalmology, University of Washington
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- Assistant Professor, Ophthalmology and Visual Sciences, University of Michigan
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- Member of the Los Angeles Chapter Leadership Team
- Education Chair
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- Director / Former President & CEO
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- Professor of Ophthalmology, Duke Eye Center, Duke University Medical Center
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- Professor, Dept. of Molecular Genetics and Microbiology, University of Florida
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- Manager
- Member of the Chicago Chapter Leadership Team
- Member of the Cleveland Chapter Leadership Team
- Member of the Fort Wayne Chapter Leadership Team
- Member of the Indianapolis Chapter Leadership Team
- Manager, Chapter Engagement
We are actively recruiting leadership in the Fort Wayne chapter! For more information, please reach out to Allie Sarwark at ASarwark@FightingBlindness.
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- Senior Vice President, Science Strategy and Awards
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- Member of the Chicago Chapter Leadership Team
- Chapter President
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- Member of the Kansas City Chapter Leadership Team
- Chapter Engagement Manager - Midwest
We are actively recruiting leadership in the Kansas City chapter! For more information, please reach out to Andrea Harper at AHarper@FightingBlindness.org.
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- Member of the Indianapolis Chapter Leadership Team
- Chapter President
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- Member of the Charlotte Chapter Leadership Team
- Co Resource Chair
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- Member of the Fort Wayne Chapter Leadership Team
- Vice President
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- Anthony Donn Professor of Ophthalmic Science, Professor of Pathology & Cell Biology, Columbia University
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- Member of the Cleveland Chapter Leadership Team
- Revenue Chair
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- Member of the Arizona Chapter Leadership Team
- Education Chair
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- Member of the Boston Chapter Leadership Team
- Member of the New York Chapter Leadership Team
- Chapter Engagement Manager
- Director, Chapter Engagement, East
We are actively recruiting leadership in the Long Island Chapter! For more information, please reach out to Bailey Bostelman at BBostelman@FightingBlindness.org.
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- Member of the New York Chapter Leadership Team
- Resource Chair
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- Chairman, Department of Ophthalmic Research, Cleveland Clinic Foundation
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- Vice President, Science Communications
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- Member of the Seattle Chapter Leadership Team
- Education Chair
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- Member of the Foundation Board Officers Team
- Vice Chair, Marketing, Communications and Social Media / Co - Founder, Two Blind Brothers / New York, New York
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- Member of the Charlotte Chapter Leadership Team
- Chapter President
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- Professor of Ophthalmology, SmartState Endowed Chair in Gene and Pharmaceutical Treatment of Retinal Degenerative Diseases, Medical University of South Carolina
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- Carolyn F. Jones Professor of Ophthalmology, Director, Center for Preventive Ophthalmology & Biostatistics, University of Pennsylvania
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- Member of the Jacksonville Chapter Leadership Team
- Member of the Nashville Chapter Leadership Team
- Chapter Engagement Manager, South
We are actively recruiting leadership in the Naples chapter! For more information, please reach out to Cassandra Fridovich at Cfridovich@FightingBlindness.org.
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- Professor of Ophthalmology, Depts
Professor of Ophthalmology, Depts of Ophthalmology & Cell Biology, George and Geneva Boguslavsky Distinguished Professor of Eye Research, Professor in Cell Biology, Duke University School of Medicine
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- Member of the Austin Chapter Leadership Team
- Diversity & Inclusion Chair
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- Senior Director, Preclinical Translational Research Program
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- Member of the Los Angeles Chapter Leadership Team
- Resource Chair
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- Member of the Charlotte Chapter Leadership Team
- Chapter Engagement Manager, South
We are actively recruiting leadership in the Charlotte chapter! For more information, please reach out to Chelsea Warr at CWarr@FightingBlindness.org.
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- Vice President, Marketing & Communications
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- Chief Scientific Officer
- Foundation Fighting Blindness As Chief Scientific Officer
Dr. Gelfman joined the Foundation Fighting Blindness as Chief Scientific Officer in April 2021. She is responsible for leading the overarching scientific strategy for the organization with a focus on research initiatives designed to accelerate new treatments and cures for inherited retinal diseases. Additionally, she oversees the Foundation's non-clinical research portfolio, including early translational and pre-clinical research programs, and serves as the primary scientific contact with the Foundation's Scientific Advisory Board, the Research Oversight Committee, academic institutions, and government science agencies.
She was previously Vice President, Pharmaceutical Development, at Adverum Biotechnologies, an ocular gene therapy company developing AAV-based treatments for wet age-related macular degeneration and inherited retinal diseases. Prior to that, she was the Senior Director, Scientific Services/Preclinical and Translational Science at Ora, Inc., an ophthalmic contract research organization (CRO) providing pre-clinical, regulatory, and clinical trial services for companies worldwide. She designed preclinical and translational strategies and integrated them into the clinical development process for the advancement of therapeutics to treat major unmet medical needs. Prior to Ora, Dr. Gelfman spent 12 years at Lexicon Pharmaceuticals in the area of molecular genetics where she was involved in early drug target discovery using molecular, cellular, and biochemical approaches, and directed in vivo pharmacology efforts in the areas of ocular inflammation and retinal degeneration.
She received a postdoctoral fellowship grant from the National Eye Institute to study changes in gene expression in the retinal pigmented epithelium at the University of California Davis, where she also taught and mentored both undergraduate and graduate students. Her experience covers more than 20 years in drug discovery and development in ophthalmology, spanning academia, the CRO industry, and the biotechnology sector. Dr. Gelfman holds a BA in Biology from Washington University in St. Louis, and a Ph.D. in Biochemistry from The University of Texas at Austin.
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- Member of the Los Angeles Chapter Leadership Team
- Membership Chair
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- Member of the Arizona Chapter Leadership Team
- Vice President
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- Senior Director, Legacy Giving
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- Director
- Executive Advisor
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- Chairman
- Co - Founder
- Member of the Foundation Board Officers Team
- Principal
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- Scientific Director, Director, Rose - Silverthorne Retinal Degenerations Laboratory, Retina Foundation of the Southwest
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- Director
- Executive Chairman
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- Lab Director, Professor of Ophthalmology and Nuerobiology, Jules Stein Eye Institute, University of California, Los Angeles
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- Professor, Ophthalmology and Visual Sciences, Professor, Biological Chemistry, Kellogg Eye Center, University of Michigan
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- Member of the Nashville Chapter Leadership Team
- Resource Chair
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- Group Leader, Biotherapeutics Department, Institut De La Vision, Paris, France
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- Professor of Ophthalmology, Co - Director, Johns Hopkins Center for Stem Cells and Ocular Regenerative Medicine ( STORM ), Johns Hopkins University School of Medicine
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- Member of the Chicago Chapter Leadership Team
- Accessibility, Inclusion, Diversity, and Equity Chair
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- Associate Professor of Genetics, Ophthalmology, Department of Genetics, Stanford University School of Medicine
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- Member of the Jacksonville Chapter Leadership Team
- Education Chair
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- Assistant Professor of Ophthalmology at the Shiley Eye Institute
Dr. Shyamanga Borooah, an Assistant Professor of Ophthalmology at the Shiley Eye Institute in San Diego, presents frequent questions when coming to see a retinal specialist on the first or subsequent visit.
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- Member of the Foundation Board Officers Team
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- Assistant Professor, Department of Ophthalmology Research, University of Florida College of Medicine
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- Senior Full Professor, Center for Medical Genetics Ghent, Ghent University, Senior Clinical Investigator, Research Foundation Flanders
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- Staff Director, Ocular Genetics Program, Department of Ophthalmology and Vision Sciences, SickKids, University of Toronto
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- Member of the Charlotte Chapter Leadership Team
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- Member of the Jacksonville Chapter Leadership Team
- Vice President
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- William F. Chatlos Professor, Ophthalmology, Massachusetts Eye and Ear Infirmary
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- Member of the Kansas City Chapter Leadership Team
- Education Chair
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- Member of the Boston Chapter Leadership Team
- Education Chairs
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- Vice - Chairman / Professor of Ophthalmology, Retina and Vitreous Clinic, University of California, San Francisco
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- Director / Armonk, New York
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- Member of the Arizona Chapter Leadership Team
- Arizona Chapter President
- Chapter President
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- Member of the New York Chapter Leadership Team
- Chapter President
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- Professor, Department of Human Genetics, Radboud University Medical Centre, Principal Investigator, Donders Center of Medical Neurosciences
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- Ophthalmic Research Consultants, LLC
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- Professor of Genetics, Smurfit Institute of Genetics, Trinity College Dublin
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- Member of the Cleveland Chapter Leadership Team
- Accessibility, Inclusion, Diversity, and Equity Chair
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- President, PharmaLogic Development, Inc
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- Member of the Foundation Board Officers Team
- Co - Founder, Director, Chairman Emeritus / Chairman and CEO
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- Member of the Fort Wayne Chapter Leadership Team
- Resource Chair
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- Professor, Medical Genetics and Ophthalmology, School of Veterinary Medicine, University of Pennsylvania
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- Member of the Kansas City Chapter Leadership Team
- Resource Chair
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- Member of the Foundation Board Officers Team
- Partner
- Secretary
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- Director, Institute of Molecular and Clinical Ophthalmology Basel, Professor and Chairman, Department of Ophthalmology, University of Basel
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- Full Professor, Département De Génétique, Institut De La Vision
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- Professor of Clinical Ophthalmology, Beckman Vision Center, University of California, San Francisco
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- Member of the Chicago Chapter Leadership Team
- Chapter Vice President
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- Chief, Retina Division, Professor of Ophthalmology, Johns Hopkins University School of Medicine
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- Member of the Los Angeles Chapter Leadership Team
- Vice President
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- Anthony Donn Professor of Ophthalmic Science, Professor of Pathology & Cell Biology, Columbia University
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- Medical Director, Hoover Low Vision Rehabilitation Services, Greater Baltimore Medical Center
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- Director / Co - Founder, Chief Giving Officer
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- Director / San Francisco, California
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- Member of the Charlotte Chapter Leadership Team
- Vice President
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- President and CEO, MindsEye Radio
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- Director, Inherited Retinal Disorders Service, Massachusetts Eye and Ear, Assistant Professor of Ophthalmology, Harvard Medical School
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- Chief Executive Officer
- Chief Executive Officer at the Foundation Fighting
Jason Menzo is the chief executive officer at the Foundation Fighting Blindness, the world's largest private funder of research for finding treatments and cures of a variety of blinding retinal degenerative diseases. The Foundation has raised over $891 million since its inception, and is currently funding 81 research projects, and more than 35 clinical trials globally.
Prior to joining the Foundation, Jason was the Vice President of Sales and Marketing, and subsequently the Business Unit Head for Sun Ophthalmics. He was one of four founding members of Sun Ophthalmics, and helped to build it from the ground up and into the well-known entity it is today.
He was also a founding member of Nicox, Inc. where he led the commercial launches of three ophthalmic brands. He has previously held positions of increasing responsibility with Bausch + Lomb and Inspire Pharmaceuticals.
Job Titles:
- Member of the Foundation Board Officers Team
- Vice Chair, Board Communications & Development and Treasurer / Chief Operating Officer
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- Member of the Chicago Chapter Leadership Team
- Education Chair
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- Vice President, Database Systems & Technology
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- Member of the Indianapolis Chapter Leadership Team
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- Director / Co - Founder, Former Managing Partner
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- Dept. of Ophthalmology, Emory University School of Medicine
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- Member of the Cleveland Chapter Leadership Team
- Vice President
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- Associate Professor, Department of Ophthalmology, University of Washington
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- Member of the Austin Chapter Leadership Team
- Education Chair
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- Professor of Molecular Biology & Genetics, Johns Hopkins University
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- Member of the Los Angeles Chapter Leadership Team
- Chapter President
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- Vocational Rehabilitation Counselor
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- Member of the Nashville Chapter Leadership Team
- Co - Education Chair
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- Professor of Ophthalmology, Director of Retina, Director of Macular Degeneration Center of Excellence, Department of Ophthalmology and Visual Sciences, University of Massachusetts Medical School
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- Department of Ophthalmology College of Medicine, University of Florida
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- Professor of Neurobiology, Dept. Molecular & Cell Biology, Assoc. Director, Helen Wills Neuroscience Institute, University of California, Berkeley
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- Member of the New York Chapter Leadership Team
- Education Chair
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- Vice Chair, Research / Professor of Medicine
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- Director / Duane Morris LLP / South Orange, New Jersey
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- Chief Development Officer
- Senior Vice President
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- Member of the Seattle Chapter Leadership Team
- Resource Chair
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- Chapter Engagement Manager, Southwest
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- Member of the Arizona Chapter Leadership Team
- Member of the Austin Chapter Leadership Team
- Chapter Engagement Manager
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- Member of the Foundation Board Officers Team
- Executive Vice Chair / Co - Founder
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- Assistant Professor, Ophthalmology and Visual Sciences, Genetic Counselor, Inherited Retinal Dystrophy Clinic, Kellogg Eye Center, University of Michigan
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- Member of the Fort Wayne Chapter Leadership Team
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- Member of the Arizona Chapter Leadership Team
- Revenue Chair
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- Member of the Indianapolis Chapter Leadership Team
- Education Chair
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- Accessibility, Inclusion, Diversity, and Equity Chair
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- Director / Chair, Co - Founder, HOPE in FOCUS
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- Director of Camp Abilities
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- Diversity & Inclusion Chair
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- Vice - Chair for Research, Vickie and Jack Farber Vision Research Center at Wil
Vice-Chair for Research, Vickie and Jack Farber Vision Research Center at Wills Eye, Wills Eye Hospital, Professor and Vice Chair of Research, Ophthalmology, Sidney Kimmel Medical College at Thomas Jefferson University
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- Member of the Indianapolis Chapter Leadership Team
- Vice President
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- Member of the Austin Chapter Leadership Team
- President
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- Member of the Jacksonville Chapter Leadership Team
- Resource Chair
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- Robert R. Young Professor of Ophthalmology and Visual Science, Department of Ophthalmology and Visual Science, Yale University School of Medicine, Chief of Ophthalmology, Yale New Haven Hospital
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- Member of the Indianapolis Chapter Leadership Team
- Revenue Chair
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- Professor and Chair, Institute of Ophthalmology and Visual
Professor and Chair, Institute of Ophthalmology and Visual Science, UMDNJ-New Jersey Medical School, Professor of Neurosciences, UMDNJ-New Jersey Medical School, Chief, Department of Ophthalmology, University Hospital, Newark, New Jersey
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- Member of the Chicago Chapter Leadership Team
- Revenue Chair
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- Professor of Ophthalmology, School
Professor of Ophthalmology, School of Medicine, Kenneth C. Swan Endowed Professor of Ophthalmology, Chief, Paul H. Casey Ophthalmic Genetics Division, Ophthalmology, School of Medicine, Molecular and Medical Genetics, School of Medicine, Casey Eye Institute, Oregon Health & Science University
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- Member of the Nashville Chapter Leadership Team
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- Member of the Boston Chapter Leadership Team
- Chapter President
- Director / Arlington, Massachusetts
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- Vice Chair, at Large / Raleigh, North Carolina
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- Member of the Kansas City Chapter Leadership Team
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- Carolyn F. Jones Professor of Ophthalmology, Director, Center for Preventive Ophthalmology & Biostatistics, University of Pennsylvania
Member
Goldis Malek, PhD
Associate Professor in Ophthalmology, Vice-Chair of Diversity, Equity and Inclusion, Associate Professor in the Department of Pathology, Faculty Network Member of the Duke Institute for Brain Sciences, Duke University School of Medicine
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- Member of the Charlotte Chapter Leadership Team
- Revenue Chair
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- Member of the Jacksonville Chapter Leadership Team
- Chapter Accessibility, Inclusion, Diversity, and Equity Chair
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- Member of the Cleveland Chapter Leadership Team
- Education Chair
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- Associate Professor of Ophthalmology, Co
Associate Professor of Ophthalmology, Co-Director, Ocular Regenerative Medicine Institute, Director, Minda de Gunzburg Center for Retinal Regeneration, Schepens Eye Research Institute, Harvard Medical School
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- Manager
- Member of the Los Angeles Chapter Leadership Team
- Member of the Seattle Chapter Leadership Team
- Director, Chapter Engagement, West
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- Member of the Nashville Chapter Leadership Team
- Education Chair
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- Member of the Boston Chapter Leadership Team
- Revenue Chair
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- Paul R. Lichter Professor of Ophthalmic Genetics, Associate Professor, Ophthalmology and Visual Sciences, Associate Chair, Strategic Implementation, Michigan Medicine, Ophthalmology Retina Clinic
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- Assistant Professor of Ophthalmology, School of Medicine, Casey Eye Institute, Oregon Health & Science University
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- Member of the Cleveland Chapter Leadership Team
- Chapter President
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- Chief Operating Officer
- Board Member for First Flight Venture Center
- Chief Operating Officer for Foundation Fighting
Peter Ginsberg is chief operating officer for Foundation Fighting Blindness. In that role, Mr. Ginsberg oversees the development of financial plans and processes while providing leadership on business transactions, strategic planning, and new activities aimed at creating novel revenue streams across the Foundation Fighting Blindness and RD Fund. He led record-setting transactions during his tenure with large and small biopharmaceutical companies and has worked extensively within ophthalmology, inspired by his long-time mentor who has retinitis pigmentosa.
Most recently, Mr. Ginsberg served as vice president of business development at Savara Pharmaceuticals (SVRA), an orphan lung disease company. Previously, he headed business development for BioDelivery Sciences (BDSI), United Therapeutics (UTHR) and SurModics (SRDX). Ginsberg also served as VP of business & technology development for the North Carolina Biotechnology Center, where his group financed and advised emerging life science companies. He further spent 15 years in the healthcare investment industry, during which time he was named a Wall Street Journal All-Star as Piper Jaffray's lead biotechnology analyst.
Ginsberg serves as a board member for First Flight Venture Center and is a Chartered Financial Analyst and member of the CFA Institute. He earned an A.B. in Economics from Princeton University and an M.B.A. from the Tuck School of Business at Dartmouth College.
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- Professor of Ophthalmology and Pathology, Chief
Professor of Ophthalmology and Pathology, Chief of Ophthalmic Molecular Genetics Laboratory (CLIA certified), Director of Shiley Eye Institute BioBank, Viterbi Family Chair III, Shiley Eye Center, University of California, San Diego
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- Member of the Austin Chapter Leadership Team
- Resource Chair
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- Member of the Arizona Chapter Leadership Team
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- Senior Director, Development
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- Member of the Fort Wayne Chapter Leadership Team
- Chapter President
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- Member of the Indianapolis Chapter Leadership Team
- Resource Chair
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- Chief Human Resources Officer
Ms. Donat leads human resource functions, including employee relations and employment law compliance, recruiting, compensation, staff development, training, and diversity. Importantly, Ms. Donat nurtures and continues to build a culture of inclusion, operational excellence, integrity, compassion, innovation, teamwork, and a desire to achieve the mission of the Foundation Fighting Blindness.
Ms. Donat received her undergraduate degree in psychology at Humboldt State University and her Senior Professional in Human Resources (SPHR) certification.
Ms. Donat brings over 20 years of broad and extensive human resources experience, including business strategy, performance management, talent acquisition, diversity, inequity, access and inclusion, mergers and acquisitions, compensation, benefits, and HRIS. Most recently, Ms. Donat served as the human services director at the Walker Art Center in Minneapolis.
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- Professor of Molecular Therapy for Inherited Retinal Diseases, Department of Human Genetics, Radboud University Medical Centre
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- Senior Investigator, Center for Integrated Health Care Research, Hawaii Permanente Medical Group
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- Robert R. Young Professor of Ophthalmology and Visual Science, Department of Ophthalmology and Visual Science, Yale University School of Medicine, Chief of Ophthalmology, Yale New Haven Hospital
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- Founding Board Director of Opus Genetics, Board
- Managing Director for the Foundation
- Managing Director, RD Fund
Rusty Kelley is the managing director for the Foundation's venture arm, the Retinal Degeneration Fund with responsibility for all external investments that strategically align with the Foundation's therapeutic mission. Rusty brings over 25 years of experience in identifying and developing life science technologies to his leadership role.
Prior to the RD Fund, Rusty led translational and interdisciplinary science programs at the Burroughs Wellcome Fund (BWF). Prior to BWF, Rusty was a senior scientist, director and then head of preclinical at Tengion, a tissue engineering biotech firm that spun-out of Boston Children's Hospital and Wake Forest University.
Earlier in his career out of Wilmington NC, Rusty served in clinical development at PPD, Inc. where he helped manage clinical trials in the divisions of Medicine, NIH trials and Infectious Disease. Prior to PPD, Rusty served on the bench in the pharmaceutics and analytical chemistry divisions for AAIPharma.
Rusty received a BA in Chemistry from UNC Chapel Hill, a PhD in Pharmacology at LSU's Health Sciences Center. He was then awarded an American Heart Association postdoctoral fellowship in the School of Medicine at UNC Chapel Hill, and recently earned an MBA from Duke University's Fuqua School of Business.
Rusty is currently a founding Board director of Opus Genetics, Board director of SparingVision, and Board observer for Atsena Therapeutics, Nacuity Pharmaceuticals, and Vedere Bio. He also serves as a Board Director of DC-based Health Research Alliance (HRA) and North Carolina's Council for Entrepreneurial Development (CED).
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- Member of the Cleveland Chapter Leadership Team
- Resource Chair
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- Member of the Seattle Chapter Leadership Team
- Chapter President
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- Chairman
- Member of the Boston Chapter Leadership Team
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- Foundation Board Director
- Director / Castle Rock, CO
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- Member of the Boston Chapter Leadership Team
- Vice President
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- Assistant Pofessor, Department of Ophthalmology, University of Florida
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- Member of the Charlotte Chapter Leadership Team
- Education Chair
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- Member of the Los Angeles Chapter Leadership Team
- Diversity & Inclusion Chair
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- Professor, Comparative Ophthalmology, Dept. of Small Animal Clinical Sciences, Michigan State University
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- Member of the Seattle Chapter Leadership Team
- Vice President
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- Human Genetics Center, School of Public Health the Univ. of Texas Health Science Center at Houston ( UTHealth ) Houston, TX
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- Member of the Foundation Board Officers Team
- Interim Vice Chair, Development / Managing Director
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- Member of the Jacksonville Chapter Leadership Team
- Revenue Chair
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- Member of the Kansas City Chapter Leadership Team
- Vice President
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- Member of the Kansas City Chapter Leadership Team
- Chapter President
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- Member of the Arizona Chapter Leadership Team
- Resource Chair
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- Professor, Department of Biological Structure, University of Washington School of Medicine
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- Senior Investigator, Retinal Cell Biology & Degeneration Section, Neurobiology, Neurodegeneration & Repair Laboratory, National Eye Institute
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- Senior Vice President, Clinical & Outcomes Research
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- Member of the Kansas City Chapter Leadership Team
- Revenue Chair
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- Member of the New York Chapter Leadership Team
- Vice President
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- Member of the Fort Wayne Chapter Leadership Team
- Education Chair
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- Director / Ardmore, Pennsylvania
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- Diplomate of the European College of Veterinary Ophthalmologists, Professor of Ophthalmology, School of Veterinary Medicine, University of Pennsylvania
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- Foundation Board Director
- Director / Herndon, Virginia
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- William F. Chatlos Professor, Ophthalmology, Massachusetts Eye and Ear Infirmary
Wilmer Eye Institute, Johns Hopkins Univ. Hospital; served as Director of Wilmer for 15 years.
"The Foundation Fighting Blindness is an extraordinary organization. It has given hope to people who didn't previously have hope, and it has supported the most important fundamental research in the retinal degenerations being carried out anywhere in the world today. Thanks to the Foundation, I have confidence that we will understand and be able to successfully treat many of these (retinal degenerative) diseases in the relatively near future... we are on the verge of human clinical trials and that would not have happened without the support of the Foundation Fighting Blindness."
Job Titles:
- Senior Director, Philanthropy