INVITAE CORPORATION

The Lymphangiomatosis and Gorham's Disease Alliance (LGDA) is a community-led 501(c)3 non-profit working to improve the lives of those with complex lymphatic anomalies: GLA/lymphangiomatosis, Gorham-Stout Disease (GSD), Kaposiform lymphangiomatosis (KLA) and central conducting lymphatic anomaly (CCLA)... In order to extend its international patient support and research efforts, the LGDA has established affiliate partner organizations in Europe and the United Kingdom... To further its mission to advance research that will improve diagnosis and treatment of Complex Lymphatic Anomalies (CLA), the LGDA works closely with the Lymphatic Malformation Institute (LMI). The LMI was established in December, 2010, and is focused, as a whole, on advancing the understanding of the lymphatic system and, specifically, advancing the understanding of the complex lymphatic anomalies (CLAs), including Generalized lymphatic anomaly (GLA)/Lymphangiomatosis, Gorham-Stout disease (GSD), Kaposiform..

Also known as: International LGDA Registry, LGDA Registry

Primary location: Petersburg United States