KBG FOUNDATION

KBG Foundation, a U.S.-based nonprofit organization with international partnerships working to improve the lives of people with KBG Syndrome... We have all been newly diagnosed at some point, whether it comes after years of searching or shortly after birth, we all want to know what to expect and where to go from here. We have created a document with a few tips and a list of potential specialists you may need to get to know. Patients and caregivers can join the private KBG SYNDROME FAMILIES FACEBOOK GROUP.. Researchers and clinicians: Connect with our community by joining the KBG PROFESSIONALS FACEBOOK GROUP.