LAM ACTION

LAM Action is managed by an Executive Committee, all of whom are volunteers and most of whom have LAM. We employ a part-time co-ordinator, Jill Pateman, who works from her home on Wednesdays... LAM is a progressive disease although, in the absence of treatment, progression is usually slow with a gradual decline in lung function and increase in breathlessness over time. The rate of progression varies considerably between individuals and current research is trying to identify the reasons for this variation... LAM Action provides valuable support to those with LAM and their families and helps fund important research into LAM. As a small charity focused on an extremely rare disease, we are run almost exclusively by volunteers and generate almost all of our income from donations and fundraising. Although independent from the NHS National Centre for LAM, we have close links to the medical and research staff there.

Registration numbers: 1167610 (W), CE007492 (CH)

Primary location: Newark United Kingdom