PRADER-WILLI SYNDROME SUPPORT

Prader-Willi Syndrome Support SA is an organisation of families and professionals dedicated to working together to offer support, raise awareness, provide education and advocacy for people living with Prader-Willi Syndrome in South Africa... If a family member of yours has recently been diagnosed with PWS please reach out to us via our contact page. We have a welcome pack of positive information that will guide you along your journey. We know that the time of diagnosis is really hard and it often helps just to know there are other people out there on the same journey and that you are not alone. Although you may feel overwhelmed with this diagnosis there is a lot you can do to help your child with PWS live a happy, fulfilling and healthy life. Many parents look back upon the day their child was diagnosed and reflect that they should have worried less and enjoyed more. How they were often pleasantly surprised by their child and what he or she has been capable of.

Also known as: Prader-Willi, Prader-Willi Syndrome Support SA