THE UK LSD PATIENT COLLABORATIVE

The UK LSD Patient Collaborative Group is comprised of patient organisations representing those affected by Lysosomal Storage Disorders (LSDs). We have joined together to form an action group to advocate and work on behalf of LSD patients and their families in the UK. The group is made up of representatives from 7 charities in the UK who provide support and information to patients and families affected by different LSDs. Together we represent over 70 rare and ultra rare diseases and almost 2500 patients and their families... The members of the UK LSD Patient Collaborative work on various projects that can impact the LSD community,

Also known as: LSD Collaborative

Primary location: United Kingdom