RADEEP

RADeep is the acronym for the Rare Anaemia Disorders European Epidemiological Platform. RADeep is an initiative endorsed by EuroBloodNet for pooling data from patients affected by a rare anaemia disorder. RADeep is built in line with ENROL and the EU-RD-Platform recommendations for patients' registries on rare disorders. RADeep contributes to ENROL and EU-RD-Platform... Due to complications of the disease but also of the treatment, RAD become over time multi-organ disorders, requiring the involvement of several medical and paramedical specialties. This creates an important burden in the health systems that require monitoring of trends allowing shaping policies aiming to ensure the cost-effective allocation of resources. In the case of RAD, this is particularly important since expertise cannot be made available in every health unit with very small numbers of patients. However, health authorities cannot proceed with the development of services without reliable epidemiological..

Also known as: RADeep Network