JGZEBRA

JG Zebra has taken a leading role in setting up and running the EURORDIS award-winning Project HERCULES, an ongoing collaboration led by patient organisation Duchenne UK. We provide project management and Josie Godfrey acts as Strategic Director. Bringing together patients and carers, clinicians, industry, academia, HTA bodies and other stakeholders, the project has broken new ground in developing tools to promote access to treatments in rare diseases. Project HERCULES has delivered a gold standard economic model for Duchenne Muscular Dystrophy, and the tools and data required to populate the model... JG Zebra supported the establishment of a Gene and Cell Therapy Working Group for the European Confederation of Pharmaceutical Entrepreneurs (EUCOPE). Bringing together over 12 companies and identifying shared priorities, we developed an agreed position statement and work programme for the group, focussing on shared understanding, challenges and potential solutions to access and the..