CMD Families in Action UK provides a link up service to help find other families in your area. We aim to put families with children and young people with Congenital Myotonic Dystrophy in touch with each other.The purpose is to support and arrange meet and greets with people who understand some challenges you may face.You can join our Closed Facebook Group for online contact with other families who find themselves in similar situations for support and friendship. Between us we have a wealth of experience when needing to find resources and how to get the best service for you and your family...
Meet other families with Congenital Myotonic Dystrophy for meets, support and facebook friendships.