CAVERNOMA-EUROPE.ORG
Updated 580 days ago
As a European network of national patient advocacy organisations, it's our mission to empower cavernoma patients in Europe by providing them with high-quality information, resources, tools and emotional support. We promote creative, yet strategic interventions and stimulate productive collaborations between researchers, patients and clinicians in order to accelerate better care, treatment options and ultimately to find a cure for cavernoma/cerebral cavernous malformations (CCM)...
Our values are to be Collaborative, Informative, High quality, Empowering, Supportive and Trustworthy.