HUNTER'S HOPE

Hunter's Hope was formed in honor of my sweet, funny, "best guy" Grandson, Hunter. My dear friend Sheri, whose sons also have an (ultra) rare disease and I spent many coffee dates talking about how we needed to be proactive in furthering research, helping others in our situation and increasing awareness. So, here we are, committed to making a difference for the better... Not only does Hunter struggle with his motor abilities, but he also has cognitive delays, due to the specific genes affected in his mutation. These delays affect his communication, interactions with peers, learning abilities, behavior and every facet of his life. We would not change anything about our precious boy, except his future. We can handle the cognitive issues, as frustrating as they may be, but what really brings us to our knees is the havoc that Duchenne muscular dystrophy wreaks on his body... We have to be honest. There are many days that this diagnosis shatters us to the point it is hard to breath, hard..

Also known as: Hunter's Hope Heroes