HHUGS-UK

HHUGS-UK is an organisation exists to improve the lives of everyone affected by the condition, Hypothalamic Hamartoma Uncontrolled Gelastic Seizures. We are led by and represent people with Hypothalamic Hamartoma, a rare form of brain tumour, their families, carers and other people who have interest in the group. HHUGS-UK is here to support them every step of the way through living with the condition... What Do We Do? We exist to improve the lives of everyone affected by HHUGS. To do this we must ensure that all people with it have specialist healthcare and treatment for their condition and can lead their lives free of stigma, prejudice and discrimination.We provide advice and information, online and directly through direct communication. Our UK network group is growing all the time and gives people a great chance to share experiences and support each other. Our Facebook page has members around the world, all supporting each other, alongside other group pages.

Also known as: Hypothalamic Hamartoma Uncontrolled Gelastic Seizures-United Kingdom

Registration numbers: 1098698 (W)

Primary location: Amersham United Kingdom