ICFDMAS

The idea of the International Consortium for Fibrous Dysplasia and the McCune Albright Syndrome (ICFDMAS) emerged at a multidisciplinary workshop attended by FD/MAS patients, doctors and clinical researchers in Oxford, England 2015. A consensus was reached to create an international, multi-st akeholder partnership to advance research and clinical care in FD/MAS. The consortium has been meeting every 1-2 years since with meetings in Lyon (2016), Leiden (2017) and Florence (2019) and Silver Spring (2023)... Fibrous Dysplasia/McCune-Albright syndrome (FD/MAS) is a rare and complicated disease that might affect your bones, skin, hormone glands and might even cause benign tumors like myxomas or cysts.