PLASMINOGEN DEFICIENCY FOUNDATION

Plasminogen deficiency is not the same as hemophilia; yet the same doctors, called hematologists, who treat hemophilia, are also the experts at treating PLGD. Some hematologists work in centers called Hemophilia Treatment Centers, or HTCs, where they can provide care as a team alongside pharmacists, social workers, career and school counselors, child life specialists, and insurance specialists. Choosing an HTC gives you a medical home, coordinated care, and assistance with the many life challenges that patients with PLGD will face... The Board of the Plasminogen Deficiency Foundation has had the opportunity to work with the leadership team at Kedrion to provide the patient perspective on plasminogen deficiency, and the multitude of ways that patients need support in living with this disorder. Below are questions and answers about the launch of Ryplazim, summarized from our conversations with the leadership team at Kedrion. We look forward to continuing this relationship in support of..

Also known as: plasminogen deficiency

Primary location: Chapel Hill United States