EDSKC

EDSKC Collaboration Inc. is a community of patients and supporters collaborating with health care professionals and researchers to accelerate awareness, diagnosis, care and treatment of Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD) and related conditions... EDSKC Collaboration Inc. was established as a nonprofit organization in 2018 by Wendy Cogan and Fred Stein, two first cousins diagnosed with hEDS who suffered undiagnosed for many years with life altering and, at times, life threatening conditions associated with EDS... We are a group of volunteers working together to support education initiatives, advocacy, research, community-building and care for the EDS and HSD populations.

Also known as: EDSKC Collaboration, EDSKC Collaboration Inc.