NATIONAL SURVEY OF CHILDREN'S HEALTH

The pilot to design and test the DRC public facing online/web-based data query and user support website involved five phases to assess interest, capacity and support needed to use data resulting from the NS-CSHCN and other similar data sets, like the NSCH. Focusing on the Title V and family-leader audiences, these phases included (1) in-person focus groups, (2) standardized self-reported surveys indicating interest and reactions to design elements, (3) in-depth structured interviews to identify preferred features and content for an online data query tool and resource center and (4) a workshop to further discuss needs and options for designing the Data Resource Center (DRC) and (5) an in-person website demonstration and evaluation session. Input obtained during 22 in-person educational workshops on the DRC and the use of the DRC by over 12,000 users (800,000 hits) was evaluated to assess the usability and value of the DRC in expanding the use of national data sets by non-research..

Also known as: National Maternal, NS-CSHCN, NSCH