MGBASE

The MGBase Registry is the first global observational registry to be launched for patients diagnosed with Myasthenia Gravis. Developed as an extension to the highly successful MSBase Registry for patient with Multiple Sclerosis, the MGBase registry is dedicated to evaluating outcomes data in Myasthenia Gravis through collaborative international research. As a global MG database, MGBase will significantly advance myasthenia research and improve the quality of care and outcomes for patients with MG... MGBase is designed to be used in an outpatient clinic during regular neurological consultations. It provides a longitudinal graphical display of the patient disease course, therapies and outcomes. It is simple to input data in the clinic via an electronic Data Entry System, with de-identified data accessible to researchers. Outcome measures include symptom severity scales (eg Myasthenia Gravis Composite (MGC)), quality of life measures (eg MGQoL15R), patient reported outcome measures (eg..

Also known as: MGBase Registry

Primary location: Melbourne Australia