CYPRUS

Updated 23 days ago
  • Age: 14 years
  • ID: 50831772/14
The Cyprus Alliance for Rare Disorders (CARD) is a non-profit organization founded on June 2, 2010. Its purpose is to provide a dynamic and united voice to the approximately 60,000 patients with rare diseases currently diagnosed in Cyprus... The Cyprus Association for PCD/Kartagener Syndrome "Breathing Together" aims to inform patients and raise awareness to the public and to relevant bodies as well as to ensure the patients' rights and improve their quality of life. Its members are patients, patients' families and friends as well as scientists, doctors, nurses and physiotherapists with an interest in this disorder... Our Mission - Improve the quality of life of those affected by PCD and support research initiatives towards the development of novel treatments for this disease.
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Interest Score
1
HIT Score
0.75
Domain
pcdcyprus.com

Actual
www.pcdcyprus.com

IP
34.160.81.203

Status
OK

Category
Company, Other
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