CURE SPG52

Cure SPG52 is part of a larger non-profit mission to finding a cure for Hereditary Spastic Paraplegia types 47 (SPG47), 50 (SPG50), 51 (SPG51), and 52 (SPG52). The organization is known as Cure AP-4... Due to the shared Natural History Study of the four AP-4 related subtypes of Hereditary Spastic Paraplegia, Cure SPG47 has recently expanded its non-profit mission. The organization has been re-branded as Cure AP-4, and we now support families and research projects for SPG47, SPG50, SPG51 and SPG52... The Cure AP-4 non-profit organization was founded in 2016 by families of two of the known SPG47 patients. It was originally founded as Cure SPG47, but the mission has since expanded to include all four AP-4 related disorders due to shared natural history, goals and patient/family needs. We refuse to accept the bleak prognosis which our children face. We have decided to fight. The purpose of this organization is to study and seek a cure for all AP-4 HSP disorders. We aim to improve the..