COVID-19

Our goal is to collect data on those with COVID-19 prolonged recoveries - a group that has so far been under studied - and distribute that information to both the general public and to medical professionals... We are a self-organized group of Long COVID patients working on patient-led research around the Long COVID experience. We are all researchers in relevant fields - participatory design, neuroscience, public policy, data collection and analysis, human-centered design, health activism - in addition to having intimate knowledge of COVID-19. Our first report, "What does COVID-19 Recovery Actually Look Like?", was published on May 11th, 2020, and was the first report on Long COVID... Patient-Led Research Collaborative is a team of Long COVID patient-researchers publishing research on the Long COVID PASC condition.