XLH NETWORK

The XLH Network is helping thousands of people around the world who are affected by or interested in XLH and related disorders of phosphate wasting... In 1996 a college student in Minnesota connected online with a man in England whose wife and children have XLH, and with a man in British Columbia whose son had a spontaneous case. All of them were looking for help on the internet, and from this connection The XLH Network was founded in November, 1996 as an international volunteer group of people affected by or interested in XLH, or X-Linked Hypophosphatemia. Today we're incorporated as a 501(c)(3) tax-exempt charity - making all donations tax deductible to the fullest extent allowed by law. We are the first organization in the world specifically dedicated to XLH.

Also known as: The XLH Network, The XLH Network, Inc., XLH Network Inc.

Primary location: Albany United States