EURREB

EuRREB is dedicated to creating a comprehensive natural history registry for research of rare endocrine and bone conditions. The availability of these shared datasets for rare conditions expands the scope of discovery for researchers and for improving clinical and patient-related outcomes... EuRREB - European Registries for Rare Endocrine and Bone conditions is a collaboration of EuRRECa and EuRR-Bone. We are aiming at maximising the opportunity for all patients, health care professionals, and researchers to participate and use high quality, patient-centred registries for rare endocrine and bone/mineral conditions. We closely work together with the European Reference Networks (ERNs) and are supported by patients, clinicians, researchers, scientific societies and patient societies to build this database.

Primary location: Leiden Netherlands