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  • scdstudies.com
Sickle Cell Studies is a subsidiary of Sickle Cell 101 (SC101), a 501(c)3 non-profit organization based in Silicon Valley, California. The mission of SC101 is to provide educational resources and content pertaining to sickle cell disease and trait,..
Relevance: 46.196434
  • curesickle.org
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The Cure Sickle Cell Initiative is a collaborative, patient-focused research effort designed to accelerate promising genetic therapies to cure sickle cell disease. The Initiative considers non-traditional ways to advance research and brings together..
Relevance: 43.429592
  • scancainc.org
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The Sickle Cell Association of the National Capital Area, Inc. (SCANCA, Inc.) is a community-based organization serving the District of Columbia, Montgomery and Prince Georges Counties, and Northern Virginia. Our focus is to educate individuals about..
Relevance: 43.06957
  • sicklecellcobrede.org
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Welcome to the The Delaware Comprehensive Sickle Cell Research Center, one of the NIH Centers of Biomedical Research Excellence (COBRE). The Center is built on a foundation in Sickle Cell Disease (SCD) but with the potential to impact other chronic..
Relevance: 41.24629
  • marylandsicklecelldisease.org
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The Maryland Sickle Cell Disease Association, Inc. (MSCDA) is a 501 (c)(3), tax exempt non profit organization that was incorporated in 2006. MSCDA was formed by concerned parents and interested individuals seeking to improve the lives of persons..
Relevance: 38.390118
  • www.fscdr.org
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We are fighting a battle for people living with Sickle Cell Disease (SCD). The Foundation for Sickle Cell Disease Research (FSCDR) is the United States' first outpatient center exclusively dedicated to the treatment of and innovative research for..
Relevance: 38.359562
  • www.scdaami.org
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The Sickle Cell Disease Association of America - Michigan Chapter has been a leader in the sickle cell community since 1971. We are committed to improving the lives of people with sickle cell by keeping our mission at the center of everything we..
Relevance: 37.50042
  • www.sicklecellpartnership.org
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The Sickle Cell Disease Partnership is a multi-sector collaboration of health care stakeholders committed to advancing actionable federal health care policies that will improve the lives of patients living with Sickle Cell Disease... Our vision is a..
Relevance: 37.23445
  • www.mothersfoundations.com
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Mothers Foundation, Inc is a 501(c) organization established in 2001 with the purpose of helping to create change for the betterment of the Sickle Cell population... People with Sickle Cell Disease have unusual, and unseen challenges. We work to..
Relevance: 37.13896
  • themartincenter.org
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Martin Center, Inc. is a human services agency founded in 1969 by the late Rev. Boniface Hardin, O.S.B., and Dr. Raymond Pierce. Martin Center has remained dedicated to providing a "holistic approach" to clients battling the effects of Sickle Cell in..
Relevance: 36.557583
  • parentsforthecureofsicklecelldieaseandbetathalassemia.com
Together, Sickle Cell Disease and Beta-Thalassemia represent the most common genetic blood disorders. With the current high cost of gene therapy, a cure is unfathomable and unattainable to many. This leaves patients affected by Sickle Cell Disease..
Relevance: 36.321053
  • www.genesicnonprofit.org
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Genèsic Nonprofit Organization, Incorporated is a 501(c)(3) charitable nonprofit, health, and wellness organization passionate about helping communities understand the health challenges associated with sickle cell disease, as well as promote general..
Relevance: 36.029903
  • www.scarfworldwide.org
Founded in 2003, we have been supporting organizations that are involved in educating the general public about sickle cell disease and those that are helping sickle cell patients and their families cope with the disease. Presently, we are working..
Relevance: 36.02149
  • sicklecellwestal.org
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We work to increase community awareness of SCD and SCT through education, genetic counseling, and screening and detection. We serve individuals who are affected or at-risk of sickle cell disease in nine west Alabama counties - Fayette, Greene, Hale,..
Relevance: 35.91667
  • www.sctsp.org.uk
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The Sickle Cell and Thalassaemia Support Project was established in 1990 to address health inequalities in service provision to those families in Wolverhampton affected by sickle cell disease or thalassaemia... We are a community organisation..
Relevance: 35.754406
  • therismedical.com
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Theris Medical is a clinical-stage biopharmaceutical company creating solutions for wound care. Our mission is to help an underserved patient group which suffers from wound complications from a rare disease - sickle cell anemia... Theris Medical is..
Relevance: 35.641113
  • lamcip.org
Louisiana is in the bottom quartile of states for access to palliative care in hospitals. The MCIP Palliative and Hospice Care project is a compassionate and patient-centric initiative. By focusing on improving the quality of life for individuals..
Relevance: 35.382244
  • www.wakecountysicklecell.org
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To provide moral and psychological support to Sickle Cell clients and their families... We seek to share vital information with the community and help patients, families, caregivers and community members improve understanding of Sickle Cell Disease...
Relevance: 35.316963
  • www.schafoundation.org
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Based in Ibadan, Nigeria, with a US Subsidiary, we work with patients, families, volunteers, donors, and partners both locally and abroad to improve patient outcomes and make a difference in the lives of people affected by Sickle Cell Disease(SCD) in..
Relevance: 35.09578
  • sicklecellcare-ca.com
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Our goal throughout the process was for providers, agencies and the community to collaboratively implement this collectively developed cohesive plan. The Plan articulates specific goals to ensure that individuals with SCD receive comprehensive,..
Relevance: 34.85622
  • ascq-me.org
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ASCQ-Me asks questions which are particularly relevant to adults with Sickle Cell Disease (SCD) because these questions were based on in-depth interviews and focus groups with patients. ASCQ-Me questions ask about what people with SCD are able to do..
Relevance: 34.46659
  • ascaa.org
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The American Sickle Cell Anemia Association (ASCAA) is a Cleveland-based 501(C)(3) organization operating in the state of Ohio. Founded in 1971, the ASCAA is the world's oldest sickle cell and hemoglobinopathy service organization. We are also the..
Relevance: 33.89239
  • www.coscdc.org
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The Colorado Sickle Cell Data Collection team is comprised of researchers and data scientists from the Center for Public Health Innovation (CPHI), clinicians and researchers from the Colorado Sickle Cell Treatment and Research Center, advocates from..
Relevance: 33.660225
  • www.sicklecellcaremanchester.co.uk
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Sickle Cell Care Manchester is a charitable organisation run by people whose lives have been affected by Sickle Cell Disease for people living with Sickle Cell Disease and their families... The condition can cause individuals to isolate themselves..
Relevance: 33.635025
  • www.gbt.com
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GBT is working to discover, develop and deliver life-changing treatments for people living with grievous blood-based disorders, starting with sickle cell disease... GBT is determined to be a catalyst for change and committed to improving the care of..
Relevance: 33.392365
  • scasl.org
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The Baton Rouge Sickle Cell Anemia Foundation, Inc. is a non-profit organization governed by a board of directors and serves 11 parishes: Ascension, Assumption, East and West Baton Rouge, East and West Feliciana, Iberville, Livingston, Pointe Coupee,..
Relevance: 32.95153
  • sicklecellconsortium.org
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The Sickle Cell Consortium is committed to helping our partners navigate the challenges of Covid-19... The Sickle Cell Consortium is a unified platform to bring the sickle cell patient to the forefront of all matters regarding health, research,..
Relevance: 32.658417
  • ashresearchcollaborative.ucsf.edu
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In 2016, the NCCSCC and its northern California partners were funded by the NHLBI to join the Sickle Cell Care Coordination Initiative (SCCCI). This collaboration of experts in SCD clinical trials, implementation scientists, engaged stakeholders..
Relevance: 32.527905
  • scahfng.org
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The Sickle Cell Awareness and Health Foundation started in March 2018 as an awareness forum. The initiative stemmed from the founder‘s experience with stigmatisation and poor public knowledge of sickle cell disorder. Over time, we evolved to provide..
Relevance: 32.44614
  • akirabio.com
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Our Mission Develop innovative and accessible therapies that improve the lives of people living with sickle cell disease and other hemoglobinopathies Learn More..
Relevance: 32.359528