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  • www.celebratehopefoundation.org
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In 2013, the cause of Sturge-Weber syndrome was discovered! Now critical research is being done to help people with SWS live healthy and productive lives. Celebrate Hope Foundation is proud to support Dr. Anne Comi of Kennedy Krieger Institute in..
Relevance: 17.177214
  • timothysyndrome.org
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Our mission is to improve the diagnosis, treatment and care of individuals with CACNA1C-related disorders, including Timothy Syndrome and LongQT8, and to support the families and carers of those diagnosed... Learn about the cause and symptoms of..
Relevance: 17.168348
  • cantu.wustl.edu
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The Cantu Syndrome Interest Group is a worldwide network of clinicians, scientists and patients seeking to understand, inform and develop appropriate therapies for Cantu Syndrome. Led by groups at Washington University School of Medicine in St...
Relevance: 17.158375
  • www.satb2europe.org
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CureSATB2 is our bold initiative to drive and support international research related to SATB2-associated syndrome. Our mission is to speed up the discovery of contributing mechanisms of the disorder and bring targeted treatments - and ultimately a..
Relevance: 17.150846
  • brainlab.ku.edu
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At the Biobehavioral Research on Autism, Intellectual and Neurodevelopmental disabilities laboratory (BRAIN lab), we study brain development and how it relates to thinking abilities, movement abilities, and sensory processing. Current studies focus..
Relevance: 17.14565
  • www.pelvipharm.com
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Founded in 1999, PELVIPHARM is a contract research organization (CRO) delivering preclinical services in urology (BPH, OAB, NDO, SCI, SUI, IC/Painful bladder syndrome .), sexual (ED, PE, FSD .) and cardiovascular medicine (Hypertension,..
Relevance: 17.141924
  • www.neurolixis.com
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Neurolixis is an early-stage biopharmaceutical company focused on the discovery and development of novel drugs for the treatment of human central nervous system disorders including Parkinson's disease, rare autism spectrum disorders, depression and..
Relevance: 17.058325
  • kdvsfoundation.org
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The KdVS Foundation is proud to support Rare Disease Day! "Bringing awareness to rare diseases is crucial as it sheds light on the specific challenges faced by those affected. From […]... In honor of Rare Disease Day, we want to share this map..
Relevance: 16.94832
  • www.alzheimersresearchuk.org
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Alzheimer's Research UK is a company limited by guarantee and a registered charity. We are governed by a Board of Trustees, the Charity's board of directors... Alzheimer's Research UK is the UK's leading dementia research charity, dedicated to..
Relevance: 16.947773
  • dochas.scot
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Dochas Carers Centre is based in Lochgilphead, Argyll and Bute, United Kingdom. Dochas Fund is a Scottish Registered Charity. We are supporting Unpaid Carers in Mid Argyll, Kintyre, Gigha, Islay and Jura. We provide free service which includes..
Relevance: 16.907759
  • www.tummytroubles.com
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At Waldon Research we have developed a innovative product which supports two integral parts of the bodies digestion process which helps people suffering from Irritable Bowel Syndrome, Constipation, Diarrhea, Bloating, Crohns Disease, Inflammatory..
Relevance: 16.896093
  • demruk.org
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Dementia Research UK is a grant-making charity established in 2012. Our objective is to support research into the nature, causes, diagnosis, prevention, treatment and care of all forms of dementia, as well as research into the support and services..
Relevance: 16.875082
  • 321foundation.org
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The 3-21 Foundation's mission is to promote advances in education and cognition for people with Down syndrome so they can be empowered to pursue their dreams... We are a non-profit organization exempt from federal and state income taxes under..
Relevance: 16.872686
  • phoenixenterprises.co.uk
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Founded in 2002, Phoenix Enterprises is both a charity and a social enterprise. Each year we provide a vital safety net for over 100 vulnerable adults in Swindon with mental health issues, learning difficulties and physical disabilities. Their..
Relevance: 16.852312
  • www.fragilexcanada.ca
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FXFC promotes awareness of Fragile X. We publish a quarterly newsletter and information materials. We also hold fundraising events and organize parent advocacy groups across Canada... Transforming the lives of individuals with Fragile X, their..
Relevance: 16.845535
  • www.alzheimersresearchuk.org
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Alzheimer's Research UK is a company limited by guarantee and a registered charity. We are governed by a Board of Trustees, the Charity's board of directors... Alzheimer's Research UK is the UK's leading dementia research charity, dedicated to..
Relevance: 16.826551
  • depts.washington.edu
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As part of our ongoing research studies, we are trying to improve prenatal diagnosis of Joubert syndrome. We intend to compare imaging studies (ultrasound and fetal MRI) from pregnancies affected by Joubert syndrome and pregnancies unaffected by..
Relevance: 16.816156
  • www.talentaproject.eu
Exchange of best practices, research and testing to certificate the competences of people with Autism Spectrum Disorder (ASD), Down Syndrome, Tourette Syndrome and other neurodivergences... This project enlights the peculiar characteristics and..
Relevance: 16.7825
  • tics.wustl.edu
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Tics are repetitive, involuntary sounds or movements like eye blinking, facial grimacing, shoulder shrugging, sniffing or making small noises. Tourette syndrome is a neuropsychiatric disorder characterized by repetitive movements (motor tics) and..
Relevance: 16.776512
  • www.port-charity.org.uk
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P.O.R.T.'s mission is to fund research into CIPO, raise public and professional awareness of the condition and improve understanding of and treatment options for CIPO. Team P.O.R.T., as we call ourselves, have donated over £750,000 towards research..
Relevance: 16.77065
  • www.t21coffee.com
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We are the Lindborg Family, Stacy, Johan, Emma and Cooper. We decided to start a business that focuses on giving back to the Down syndrome community... 1. We want to financially support Down syndrome (DS) research and non-profit organizations..
Relevance: 16.765284
  • chattertots.net
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We provide assessment and treatment for a wide range of speech, language and communication difficulties in children typically preschool and primary age up to around 11 years. These include speech sound delay, speech sound disorder, dyspraxia, cleft..
Relevance: 16.7502
  • www.nlcharitabletrust.org
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New Life Charitable Trust (NLCT) is a social, health development and charitable non profit organization providing education to special children with disabilities, supporting poor people, orphans, destitute widows & unemployed women since 2017...
Relevance: 16.747658
  • reverserett.org
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As the largest funder of Rett syndrome research worldwide, RSRT has played a vital role in initiating and evolving the trajectory of progress toward cures. All genetic medicines in development by biopharma have leveraged discoveries and resources..
Relevance: 16.649872
  • www.mappnetwork.org
In 2008 the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) of the National Institutes of Health (NIH) launched the Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network. This study..
Relevance: 16.643698
  • spinal-research.org
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Spinal Research is the UK's leading charity funding research around the world to develop effective treatments for Spinal Cord Injury. We exist to beat paralysis and believe in a future where it is no longer a life sentence... As one of our valued..
Relevance: 16.59357
  • www.trisomy18.org
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The Trisomy 18 Foundation was founded in 2003 by a mother who had lost a son to Trisomy 18. Since then, our organization has been devoted to educating families and healthcare professionals about the condition and working towards a brighter future for..
Relevance: 16.57971
  • www.starlitservices.com
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Our approach is quite simple - we make realistic short term and long term goals for your kid. Then we make intervention strategies using various proven tools to reach those goals. Furthermore, we update those goals, and make newer and more..
Relevance: 16.565851
  • www.hearseehope.com
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When we first found out that our son, Conner, had Usher syndrome, we were devastated. Conner was born deaf and received a cochlear implant at a young age. Conner was getting ready to attend a mainstream kindergarten class with his hearing peers when..
Relevance: 16.51923
  • sinchanafoundation.org
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Sinchana Foundation was established in July 2014 as a charitable trust with the aim of rehabilitating and improving the quality of life for individuals with special needs. These needs stem from mental disabilities or physical challenges, due to..
Relevance: 16.445147