PATIENT LED RESEARCH COLLABORATIVE

Our mission is to facilitate patient-led and patient-involved research into Long COVID and associated conditions while following rigorous research methodology, and to advocate for policies that enable patients, particularly the most marginalized, to access care and live with dignity. We ground our work in the principles of disability justice and participatory research methods, and in the knowledge that those who experience an illness are best able to identify research questions and solutions... The Patient-Led Research Collaborative is a group of Long COVID patients and patients with associated illnesses such as ME/CFS and POTS, who are also researchers. We were born out of the Body Politic Slack support group and did the first research on Long COVID in April 2020. We are all researchers in relevant fields - biomedical research, participatory research, neuroscience, cognitive science, public policy, machine learning, human-centered design, health activism - in addition to having..